Forum Discussion
arpie
4 years agoMember
Gosh @Vix1963 - I am so sorry you are having such a tough time of it. xx Big hugs coming your way. What a shame your appt was cancelled due to the surgeon being ill :(
Hard tho it is - Try not to panic or overthink it - being frazzled is totally normal tho .... the tumour really shouldn't be growing much in the next couple of weeks - but the fear that it is, is palpable & real. xx Just take one day at a time, one hour at a time, if necessary xx. Keep as busy as you can, doing things you love doing.
Mine was Lobular (which can be fairly slow growing) & was also missed by MG just months before my GP found it by accident. That was in late Oct. I live in a regional area - and by the time I had another MG & US to confirm it, it was mid Dec & I finally had my biopsy on Xmas Eve and received my diagnosis on Jan 5. I was lucky to get in for surgery in mid January, when I also found this forum.
Your final treatment plan will only be formulated after your surgery & your surgeon receives your actual tumour pathology. Sometimes, it can be 'different' from the biopsy pathology, as different parts of the whole tumour is 'checked', not just the random biopsy 'stabs'.
The Austin has an excellent reputation & I think you said earlier that your Heart surgery will be there too? Maybe stick with it - but the final call is up to you xx
take care
Hard tho it is - Try not to panic or overthink it - being frazzled is totally normal tho .... the tumour really shouldn't be growing much in the next couple of weeks - but the fear that it is, is palpable & real. xx Just take one day at a time, one hour at a time, if necessary xx. Keep as busy as you can, doing things you love doing.
Mine was Lobular (which can be fairly slow growing) & was also missed by MG just months before my GP found it by accident. That was in late Oct. I live in a regional area - and by the time I had another MG & US to confirm it, it was mid Dec & I finally had my biopsy on Xmas Eve and received my diagnosis on Jan 5. I was lucky to get in for surgery in mid January, when I also found this forum.
Your final treatment plan will only be formulated after your surgery & your surgeon receives your actual tumour pathology. Sometimes, it can be 'different' from the biopsy pathology, as different parts of the whole tumour is 'checked', not just the random biopsy 'stabs'.
The Austin has an excellent reputation & I think you said earlier that your Heart surgery will be there too? Maybe stick with it - but the final call is up to you xx
take care