Forum Discussion
Rona
2 years agoMember
Struggling through Chemo
Hi all,
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
Looking forward to connecting 😊
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344 Replies
- CoastiejasMemberThanks @Katie46
I want to get it over with ASAP too but it is what it is I suppose....... :#Sign in to react to this post - Katie46MemberSorry to hear that @Coastiejas 😔 hopefully a week off will fix things. I dread missing a week but only because I want to get this over with as quickly as possible. Enjoy your week off 😀 even if it is frustrating.Sign in to react to this post
- CoastiejasMemberHi @Rona and @Katie46
I was supposed to have my 3rd paclitaxel today but it's been delayed a week due to some liver issues in my blood tests. I see the oncologist tomorrow morning so will find out more then. Good to have a week off but also extends things out by a week too..... :/Sign in to react to this post - CoastiejasMemberHi Ladies
Yes I have radiotherapy next too... Mid may when I finish this chemo jazz like @Katie46! We will be able to have @Rona pave the way for us! I've got altered taste too, coke tastes like lavender to me, can't stand blacktea (used to love it) now on green tea and peppermint. I have a weird constant salty taste. I can't stand curry, garlic or chilli and used to love them too! I'm told by the oncologist that taste will return when the chemo stops... bring that on I say!
I'm on the Central Coast near Sydney and it's still pretty hot here....although I'm always hot since starting chemo!!
I got some hat wigs yesterday (cap with hair attached) so am enjoying having hair again, albeit synthetic!!!
Hope everyone continues to go well!!!Sign in to react to this post - RonaMemberYes, thank goodness for fish!
Ha ha, isn’t it funny about the finger prints, I get to sneak out of work early 😂. If you ever thought about robbing a bank, now would be be the time 😂.Sign in to react to this post - Katie46MemberI've found fish still has almost 100% taste for me, so I've been eating much more. Some things taste normal for me, and some things have reduced taste and a few things taste odd or nothing at all. I just checked my fingerprints and they are very faded to almost nothing! I didn't know that was a side effect 🤣 do they come back? I'm having radiation after, but not until after mid May when I finish this round, you should be done and dusted by then.Sign in to react to this post
- RonaMemberHi Coastiejas, it sounds like good news all round here! Hope my steroids get reduced too. Round 5 and 6 for me next Tuesday then I can say one to go!!Looking forward to talking radiation 😂. Is that the next step for you?How’s the weather where you are? Sunny Perth is comfortable atm. I’m cooking slow cooker lamb in red wine today…… hopefully I can eat it. Lamb, fish , salad and cheese have been my go to foods lately, struggling with the taste still.Sign in to react to this post
- CoastiejasMemberHi @Rona and @Katie46
Good that everyone is going ok! I am having my 3rd dose on Thursday. They are tapering off my steroids with each dose. I'm tolerating each dose a bit better so far so hope that continues!
@Rona you must be excited to see the end coming nearer! :)Sign in to react to this post - RonaMemberGreat to hear you are doing ok Katie. Thanks for the mouthwash tip, my sense of taste is quite overwhelming causing weight loss for me as I just don’t have an appetite because of it.
Great you can stop the steroids, they definitely impact on sleep, will speak to my Oncologist on Thursday about stopping them. I still take them for 4 days after.
All of my fingernails are black now with ridges and just tingling, no pain.
I am constantly exhausted but it’s far better than nausea, my enthusiasm is there but the body doesn’t want to move fast.I have 2 days off of work now so it’s veggie patch time 😊.
Have you managed to get back to work? Did you decide on wearing a mask?
We have a finger scanner at work to clock on and off with but I have lost my finger prints due to Paclitaxel so it doesn’t work for me.
My Radiation Oncologist called the other day to book me in for sizing up……. I’m almost excited about it 😂.Sign in to react to this post - Katie46MemberHi @Rona, glad to hear you are doing ok. I had my third dose yesterday. I wasn't given dexamethasone for this round and I was a bit worried about nausea, but that didn't happen. My side effects so far are minimal, one of my finger nails is slightly discoloured and tender, but the rest are fine. No aches last round, a mild rash on my arms and legs which I have been given cream for, and some heartburn which I have been given tablets for. Much less fatigue than AC, just normal tired, rather than complete weakness and exhaustion. I'm also sleeping better, I'm blaming the steroids for some of the insomnia I had. My appetite is still ok, my taste, eyebrows and eyelashes are still hanging in there 😀 I think the mouth washes are helping. I'm using a combination of biotene at night and in the morning which helps with the dry mouth and salt/bicarb wash during the day. I'm also using Nilstat for mild oral thrush. All very manageable.Sign in to react to this post