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Rona
2 years agoMember
Struggling through Chemo
Hi all,
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
Looking forward to connecting 😊
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344 Replies
- Katie46MemberHi @Rona glad to hear you are going so well, and paclitaxel has been kinder to you 🙂. The hair loss is a strange one, I still have some spikes on my head, eyelashes and eyebrows, underarm gone (on both sides) but hairs still on my arm, a few elsewhere, including my big toes which I would have been happy to lose 😆
Take care, and don't overdo it! KatieSign in to react to this post - RonaMemberGood morning GorgyS and thank you…. guessing my overwhelming enthusiasm shone through!!
I asked my Oncologist about hair loss and Paclitaxel and I was told I would still lose my hair.I had very long masses of curly hair….. it’s been a shock for me but one I’m going ok with.I have nice smooth legs (no hair 😊) but I only lost the hair from under one arm!! 😂. My mastectomy side kept growing! I still have pain in that arm. I have cording and now 2 seromas which they will deal with after chemo.
Im off to cook a buffet breakfast now for 30 beautiful dementia patients 😊. I get to eat with them too….. love my job and my life.Stay strong….. have a great day 😊Sign in to react to this post - GorgySMemberHi Rona. I am so happy for you that you overcame all the side effects and came back to normality. Thanks for sharing your experience and LOOK AFTER YOURSELF. You deserved it.
Wondering if your hair has started growing back on Paclitaxel.Sign in to react to this post - RonaMemberHi GorgyS and Katie. It’s great reading how you are doing. None of this is fun but at least we can talk to each other and get it!I’m happy to hear the anti nausea meds are working for you, during AC for me….. nothing worked. I took extra steroids (docs recommendation) to try and combat it, I just ended up eating everything in sight with no taste buds and the worst taste in my mouth. I gained weight in the first week and the second week I lost it so I have remained the same.
I can honestly say the AC treatment is the worst thing I have ever experienced and could never go through that again. I honestly didn’t care if I lived or died……. I am soooo glad it’s over!!
So I’m now day 3 of Paclitaxel, it was a 5 hour infusion for me along with the anti nausea and steroids all going in IV this time. They gave me 2 antihistamines which help with side effects and I was watched closely (every 10 mins, very slow infusion). I slept through most of it 😂, side effects from the antihistamines.
I can’t even begin to tell you how great I feel!I went to work today and I genuinely feel almost like my old self, I’m sooo happy 😊.
I have a small sensation (tingling) in my hands but nothing of concern and I know it’s just a side effect.
My feet are peeling a lot now and I have to wear shoes inside as I have no grip on my heals.Hope my long post helps you both, I’m truly excited for my future (didn’t think I could ever get that feeling back).Please keep us up to date 😘Sign in to react to this post - Katie46MemberHi Gorgys, glad to hear you are doing ok. The nurses have suggested a PICC for me as they are having trouble finding my small wiggley veins. I'll see how I go once I start paclitaxel. They told me the same thing re weight, but I have actually lost about 3kg, I think because I'm eating healthier, less biscuits and potatoe chips, and I'm loving fish and veggies at the moment and eating more of them. I'm off the coffee as well, it just tastes weird. I can ask to be referred to a dietitian if I want, but at the moment I think I'm ok, and try and eat a balanced diet. We have a wig library here as well, so I might go along and try a few. At the moment I'm using bamboo caps, scarfs to jazz them up, or sun hats I got from Target. I was ok with the hairloss as well. The Look Good Feel Better program runs some really good sessions on line and in person for make-up and wigs and scarf tying, and I found that helpful. You can also register for one of their gift packs full of lovely goodies donated by the beauty industry. So far round 4 AC seems to be the same as the others, so not too bad.Sign in to react to this post
- GorgySMember
Hi Rona and Katie46. Thanks for sharing your experience. I had my second chemo session (AC) today, and it went really well, as I had a PICC catheter inserted yesterday. The anti-nausea medication is helping me a lot. My appetite is really good, and I'm trying to eat 'healthy.' However, I am worried about gaining too much weight. The nurse reassured me that it's okay; they don't want to see cancer patients losing weight. My hair started falling out on the 13th day since the first AC. My husband cut it short using a number 2 clipper. Honestly, it's not a big deal, or perhaps I'm more accepting because of my age. And also, no drama with styling my hair. I borrowed a great short good quality wig from the Wig Library. Just put on and go. Cotton beanies are for the house. I will keep you updated if any side effects come in the next few days. Please share your experiences with Paclitaxel as I am going in that direction too.
Sign in to react to this post - Katie46MemberThanks Locksley 🙂
Hope you are feeling ok today Rona, I feel the same, hoping no nausea and keep my appetite, which I think really helped me through the AC. The anti nausea treatment really worked for me with AC.Sign in to react to this post - RonaMemberHey Locksley,
Thanks for keeping us uplifted.
Thats great news for you too.
Finally having people to share this “experience” with is exactly what I needed! It beats any google pages 😊.
Hearing from Katie is great as we are just 2 weeks apart in our treatment.
I had my first Paclitaxel infusion today and I survived. I think the antihistamines knocked me the most today (never had them before) but obviously important in the treatment. I overheard another patient today during her Paclitaxel treatment being asked if she had experienced nausea or vomiting during her last Paclitaxel and she answered NO…..oh please let that be me!! I need a break from the nausea.
Again, thank you for your care xxSign in to react to this post - RonaMemberGood morning Katie, I’m just about to have my first round of Paclitaxel 😩, I’m scared….. more than the first round of red devil, don’t know why.
I’m happy for you to have finished the red devil….. well done. My oncologist told me last week, lots of women opt out as it’s too much for them (can definitely understand that) so congratulations!
I too think I either got used to it or succumbed to it 😂.
As I said my infusions are Dense Dose so I am here for 4 hours.
Flip side is it’s only once per fortnight.
I’ll let you know how I go. Currently hooked up, antihistamine just taken and about to be poisoned 😩.
Both the anti nausea and steroids are given iv this time.
Will keep you updated.Take careSign in to react to this post - LocksleyMemberHello everyone I just wanted to say you are not alone. I'm a couple of years down the track from you. I Had a lumpectomy, then mastectomy then chemo and radiation. I was diagnosed during covid. The ladies I met here online were amazing. Just having someone who got it. All of it. Who i could chat with. I've made life long friends. Be kind to yourself and put 1 foot in front of each other. Sending you all a hug. XxxSign in to react to this post