Forum Discussion
Rona
2 years agoMember
Struggling through Chemo
Hi all,
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
Looking forward to connecting 😊
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344 Replies
- Katie46MemberHow is everyone going? I had my last AC yesterday, usual issues finding a vein, I think the nurses get more stressed about it than me, my side effects seem to be the same as the last 3 rounds so far, so that's good, I think I feel slightly less 'weird' feeling but maybe I'm just getting used to it. So, first phase done and on to paclitaxel in 2 weeks. My oncologist thinks I should cope with it ok, but I suppose time will tell. Fingers crossed.Sign in to react to this post
- Katie46MemberHave fun Saturday night! 😃Sign in to react to this post
- RonaMemberAwwww, me too, bit of fuzz left. My first shower I had to decrease the water pressure….. it felt very strange.I’ve got lots of nice beanies/hats now which I’m beginning to get used to wearing.I’m going out for my sons 18th on Saturday night and I have a “going out” one that I can add a scarf or band to. I’m excited that I should be able to taste food and be reasonably well! It shouldn’t take me too long to get ready….. no hair to do 😂My boss took me out for a pedicure yesterday and lunch….. really lifted my spirits.Sign in to react to this post
- Katie46MemberMy hair started to come out around day 14. I was a bit upset at the thought of losing my hair, but decided to get it cut short, and surprisingly I enjoyed that process, and I really liked it short. Once is started coming out I got my husband to buzz cut it for me. It hasn't all come out I have a bit of fuzz left, and showers now feel like a spa on my head!Sign in to react to this post
- RonaMemberI still have some of my eyebrows and eyelashes too! My hair started falling out on day 12 of my first cycle, it just came out in clumps. It was my birthday on jan 1st so my kid’s shaved my head on New Year’s Eve 😊.On the plus side, I have smooth silky legs as those hairs are gone! 😊Sign in to react to this post
- GorgySMemberI was just running from upstairs to downstairs to pick up my phone. NO Palpitation. I am learning not to ignore the side effects and do something about that. When I feel good, I do some light house work but only what is really needed and I can do. I am better today , 7th day, but I can see we have similar side effects symptoms. Katie46...I also hope to go back to only working from home when I start paclitaxel in April. Will see. The first time in my life I am not putting pressure on myself.Sign in to react to this post
- Katie46MemberI'm off work at the moment, but hoping I can do a few days a week when I start paclitaxel. On a bighter note, for now, I still have my eyebrows and eyelashes 😄Sign in to react to this post
- RonaMemberHey Katie, just reading your post makes me feel so normal. Very similar side effects for sure.I feel (as time passes) I may have gotten off lightly with the side effects but at the time when ALL of these things are happening (nausea included) it’s downright depressing!
I’m still trying to hold down a full time job….. it’s more of a one week on, one week off atm 😩.I’m day 10 today of my last red devil cycle and I have a little tingling pain (nothing that bad) which is one of the side effects I am scared of….. coping ok right now.I’m in dry sunny perth and it’s a beautiful day which I am about to enjoy every minute of (at work).Sign in to react to this post - Katie46MemberMy symptoms seem fairly mild in comparison, I feel ok for the first few days, then hit a wall of fatigue from day 4 to 7. I'm wide awake at 3am for the first 4 days least. I feel weak and at times light headed, and then I start feeling a bit better around day 8. I have slightly peeling hands (I thought it was the hand sanitiser) and oral thrush, and I'm using Nilstat for that, and using salt/bicarb mouth wash, and biotene. I have to take a daily antibiotic as it's the wet season up here and they give it as a precaution for infection, so that may be the cause. For a few days my throat has a burning sensation when I swollow, but my taste buds are fairly intact. My feet sometimes feel hot, particularly at night. I've only had 1 headache and no palpitations. I'm using almond oil on my cuticles as they were feeling dry. It really is amazing how unpredictable the side effects are. I think I got the most side effects for the first round, and slightly less for the next 2. I am craving goats cheese.Sign in to react to this post
- RonaMemberOh, another side affect I “had” was severe heartburn. This also started about a week after my first infusion. I chomped my way through pkts of quickeze till I mentioned it to the Oncologist and she put me on Pantoprazole. I take one every day and it makes a huge difference! Only on the odd occasion do I still need a quickeze.Sign in to react to this post