Forum Discussion
Rona
2 years agoMember
Struggling through Chemo
Hi all,
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
Looking forward to connecting 😊
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344 Replies
- Katie46MemberSo far they only last a few minutes, but a new experience for me. I have to make sure I have tissues with me now, I've had to improvise with a face mask recently.Sign in to react to this post
- RonaMemberHey Katie, I’ve had a small amount of blood leak, wouldn’t call it a nose bleed though. My nose is super sensitive to the cold……water.literally drips out.Sign in to react to this post
- Katie46MemberAnyone else getting nose bleeds? Never had them all my life, but I've had a couple now.Sign in to react to this post
- Katie46MemberYou can see the Chinese Restaurant at the end of the tunnel @Rona!Sign in to react to this post
- RonaMemberAwww, had a good laugh at some of your comments. It’s truly an experience, no hair, fuzz, no eyebrows…… not having eyelashes is really weird….. I know where they’ve all gone too…… in my eyes!Welcome Paris, AC is not fun. My Oncologist told me after I had finished that it’s the strongest chemo and she congratulated me on seeing it out as many don’t, so well done, hang in there and be kind to yourself ♥️.
I spoke with the Radiation oncologist today, I finish chemo on the 16 th of April then I have 4 weeks off till Radiation starts!! Oh boy, I was thinking bout my Chinese dinner I’m going to have when I get my taste back today whilst driving home 😂.I have my bell ready to ring on the 16th, hopefully I can stay awake for the last infusion.Sign in to react to this post - CoastiejasMemberHi @Katie46
I have been without eyebrows for a good while now... but I didn't have much to begin with! I've got some good strong glasses frames that disguise my lack of eyebrows until they grow back!, I've still got a few scrappy tufts of my original hair so might have to get my hairdresser to do a tidy up now that I've got some fuzz!, My eyelashes are only just hanging in there....not much left either! But I'm having fun with different coloured wig caps and hair.... if you don't have hair you might as well have some fun with different colours and styles.....plus it keeps everyone guessing 😉!Sign in to react to this post - Katie46MemberOh wow @Coastiejas, your hair is growing back! Mine has been fuzz since AC. After it all came out I was left with about 1cm fuzz, never fell out and hasn't grown at all. After all this time my eyebrows are disappearing 🤷♀️Sign in to react to this post
- Katie46MemberHi @Paris_24, hope you are doing ok on AC, paclitaxel really does seem generally much better for most people once you get the heavy dose out of the way. It did seem like a long haul at the start. I set myself little milestones along the way (like half way through AC) which helped. I reached 2 of my milestones recently, half way through paclitaxel and reaching April, when I could say I finish chemo next month 😀Sign in to react to this post
- CoastiejasMemberHi Ladies
I've had my 5th paclitaxel today and my liver levels came back down after the reduced dose again this round. I've been doing lots of liver focused qigong so maybe that helped too....
@Rona and @Katie46 glad you're both going well... @Rona you're almost there, definitely cause for celebration when you're finished! I've got 7 rounds left now so counting down! My hair has started to grow back over the last week too..... just a bit of fuzz at this stage, not quite enough to tell what colour it is yet!
@Paris_24 well done on the AC halfway point.... you have to celebrate all the wins, and the bad stuff will be over for you soon, and hopefully you too will find the paclitaxel bit easier!Sign in to react to this post - Paris_24Member@Katie46 @Coastiejas @Rona just want to say thanks for sharing your experiences - I am weeks behind you on a similar trajectory. It is good to share the good, the bad and the ugly of treatments. Your support to each other is also encouragement. Look forward to the celebration when each of your chemo is finished and then the next phase of radiation. I am early days still on the AC cycle, half way mark achieved though.Sign in to react to this post