Forum Discussion
Rona
2 years agoMember
Struggling through Chemo
Hi all,
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
Looking forward to connecting 😊
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344 Replies
- RonaMemberThat’s grea news Coastiejas! I felt the same way with the antihistamines but otherwise pretty good. Slight set back with the injection (more pain than usual), otherwise yes, so much easier than AC.I’m just waiting to have my liver scanned 😩. Hopefully all good and I can continue my treatment.Sign in to react to this post
- CoastiejasMemberHi Ladies
I've had my first paclitaxel today. So far so good other than a bit drowsy from the antihistamines which always happens to me anyway.... but generally OK.Sign in to react to this post - CoastiejasMemberHi @Rona
Good luck with your scan tomorrow.
I'm having weekly infusions. I had dense dose AC though!
Thanks for the tip on the probiotics..... I know what you mean about the mouth taste....mine goes from salty to just weird... incidentally I bought some probiotic yoghurt today so will see how it goes!!Sign in to react to this post - RonaMemberHey Coastiejas, yes disappointing. I have to have a scan of my liver tomorrow to see what’s going on and another blood test Saturday.Good luck for tomorrow, not that you need it. I have been feeling great on Paclitaxel……. Could have done with a break from the AC!!
Are you having weekly infusions? I seem to be the only one on a dense dose (fortnightly infusions).Let us know how you go.I wanted to let you all know that I started a probiotic, doc said it was fine, and it had helped me so much with the taste in my mouth and my overall gut health, just in case you have these symptoms and need help with them 😊.Sign in to react to this post - CoastiejasMemberHi Ladies
@Rona that is disappointing.... I had some of my AC treatments delayed a week so I know how it feels... but it's for the greater good!
I have my first paclitaxel tomorrow so fingers crossed 🤞Sign in to react to this post - Katie46MemberOh no Rona! Hopefully you'll get going again next week. I feel so lucky to only be a 20 minute drive from the Alan Walker Centre in Darwin. So far I'm ok on my first dose of paclitaxel, I feel much better than on the AC. I had hot almost burning palms in the middle of the night which subsided quickly once I started wiggling my fingers. Other than that not much to report, I even went out for a walk this morning. The nurse mentioned to me that I might get a reaction on my 2nd dose, and that they would keep a close eye on me, and they can deal with it quickly and carry on at a lower rate. They sat me close to the Nurses Station for the first dose, and my nurse pretty much stayed beside me for the first 15 minutes or so, and to let them know immediately if I felt anything unusual at all. Enjoy the veggie patch!Sign in to react to this post
- RonaMemberGood morning girls 😊. I was supposed to have my second Paclitaxel infusion yesterday. After driving and hour and a half to get there, I was told I needed another blood test as my liver count was not good. After waiting 2 hours and all hooked up ready to go I was told they couldn’t go ahead (devastated). Also the lady beside had a reaction to Paclitaxel 😩, it was her second infusion. The nurses responded quickly and gave her an immune suppressant and the doc was called. I overheard the whole conversation and apparently the 2nd infusion is when you are likely to get the reaction 😳. After 30 minutes they restarted her chemo and she was fine. Also this lady (like me) is having dense dose infusions. I don’t want to scare anyone (I’m in the same boat) just be reassured every thing went ok. If this happens to me, I actually will feel better knowing how quickly it was got under control. Her reactions were pain in her back….. nothing else.I have a weeks reprieve now so it’s into the veggie patch to weed today 😊
Hope you are all doing ok.Sign in to react to this post - CoastiejasMemberThanks @Rona!
I had good news from my lymphoedema lady today..... best reading yet after a week of compression bra, sleeve and glove (I've had an auxiliary clearance with 12 nodes removed). The take home is persist with the compression garments even if they are uncomfortable and hot in this weather! B)Sign in to react to this post - RonaMemberGood news Katie, I felt less weird too but slept all the way home and during the infusion 😂.
GorgyS, you sound like you’re doing great on the AC. My Oncologist told me the opposite…… as in the side effects get easier, so far for me, this is true.Coastiejas, that AC is not fun! From the bad taste, nausea (24/7), cravings, peeling hands and feet, no energy and all round yukniss!For me the Paclitaxel has been very kind and I’m having double dose fortnightly infusions (5 hours). I almost feel normal!Let us know how you go and try not to worry.I’m off for my second infusion tomorrow and I’m not worried one bit, I’m actually looking forward to having a good sleep with the antihistamines they give me 😂.Sign in to react to this post - CoastiejasMemberThanks @Katie46 and well done today....I hope you keep feeling ok!🤞Sign in to react to this post