Hi everyone, I’m keeping up on here with everyone’s progress which is sounding great.
Glad you managed to get on with the abemaciclib treatment Katie after the dose was halved. Can I ask when the symptoms got too bad that you needed to stop?
Also have you had to have the zoledronic acid infusion?
I know Coastiejas did and had the flu like symptoms for a few days. How are you going with that Coastiejas?
I was scheduled for the zoledronic acid infusion yesterday and after 2 hours of waiting, deliberately and 2 hours of driving there ( yes, that’s me Katie…. thanks for your empathy 😊), I didn’t get the green light as I have serious symptoms of tmj ( problems with my jaw on one side).
I now have to go back to the dentist for further investigation 😩.
Ive been taking abemaciclib now for 4 days accompanied with letrozole (still waiting for a hot flush 😂).
Ive had to buy a bigger pill box 😂. I’m also taking vit D, Calcium, Magnesium and Collagen.
I’m scared at times, laugh about it, share my experiences with colleagues, don’t want to swallow all these pills, don’t want to repeatedly do my exercises but am grateful for so much more.
Im still losing weight (used to be something I wanted 😂), now I just want to try and maintain it.
Anyone else had a dramatic weight loss?
Thanks everyone for sharing your journey, it really helps ♥️