Sore Joints
Hi I was diagnosed in August 2017 at 54 after having pain in my left breast occurring between mammograms. My TNBC tumour was stage 1 grade 3 1.7cm and removed, and then had a reexicision to clear ma...
Forum Discussion
OMG! You've been thru so much already! @Jani1 Shoulder injuries are the pits!! I've had surgery/treatment on both! Such a shame you had the fall & all the injuries on top of your surgery :( Great that your nodes were clear - that's always a bonus.
Well done on going to the gym - that will at least keep everything 'moving' - with the old theory - if you don't use it, you lose it. Yes, most hormone treatment causes some sort of joint pain - I am on Exemestane and last night my left foot was KILLING me! Didn't matter what position it was in or even if I had it hanging out the side of the bed with no contact with mattress or bedding! grrrr It is fine this morning! (Thank GOD!)
Oh dear .... I think your Onc may have been extremely insensitive in the way he advised you of re the getting of any other cancers in the future & the 'possible' lack of treatment available! :( That could muck with MY brain, so can only imagine how you are feeling. I'd be concerned for every ache & pain I got (which most BC sufferers do anyway!) :( Improvements in treatment are ongoing - & who knows WHAT will be a available for us in the future - even on stuff that is currently considered 'untreatable'.
I wonder if you could get another Onc's opinion to ease your mind a bit and get a more understandable explanation of your condition & treatment?
I will be seeing my Onc every 3 months (since finishing radiation earlier this year) & it will drop off to 6 monthly or yearly from next year. I am also seeing my Rad Onc at the end of this year & guess that will drop off next year & have yearly visits with the specialist for a while yet, every Jan.
When do you see your specialist next? Maybe write down some questions re what the Onc said to you (did you record it?) Mental well being is just as important as physical well being - and he may be dismayed if his Onc is frightening his patients with comments like that! (Or even email them to his office for a written reply if you aren't seeing him soon?)
All the best - I hope the aches & pains settle down. Are you able to take Panadol Osteo or similar? I take an anti inflam called Indocid (1 a day) and it helps with mine - but check with your GP before trying anything new. xx
Well done on going to the gym - that will at least keep everything 'moving' - with the old theory - if you don't use it, you lose it. Yes, most hormone treatment causes some sort of joint pain - I am on Exemestane and last night my left foot was KILLING me! Didn't matter what position it was in or even if I had it hanging out the side of the bed with no contact with mattress or bedding! grrrr It is fine this morning! (Thank GOD!)
Oh dear .... I think your Onc may have been extremely insensitive in the way he advised you of re the getting of any other cancers in the future & the 'possible' lack of treatment available! :( That could muck with MY brain, so can only imagine how you are feeling. I'd be concerned for every ache & pain I got (which most BC sufferers do anyway!) :( Improvements in treatment are ongoing - & who knows WHAT will be a available for us in the future - even on stuff that is currently considered 'untreatable'.
I wonder if you could get another Onc's opinion to ease your mind a bit and get a more understandable explanation of your condition & treatment?
I will be seeing my Onc every 3 months (since finishing radiation earlier this year) & it will drop off to 6 monthly or yearly from next year. I am also seeing my Rad Onc at the end of this year & guess that will drop off next year & have yearly visits with the specialist for a while yet, every Jan.
When do you see your specialist next? Maybe write down some questions re what the Onc said to you (did you record it?) Mental well being is just as important as physical well being - and he may be dismayed if his Onc is frightening his patients with comments like that! (Or even email them to his office for a written reply if you aren't seeing him soon?)
All the best - I hope the aches & pains settle down. Are you able to take Panadol Osteo or similar? I take an anti inflam called Indocid (1 a day) and it helps with mine - but check with your GP before trying anything new. xx