Forum Discussion
lgray3911
9 years agoMember
Sentinel node biopsy came back positive
Hi everyone
My name is Laura and I was diagnosed with invasive ductal carsinoma in my left breast on the 10th of Feb. I have tiny breast so the cancer covered a large area so a mastectomy was necessary. I opted for bilateral mastectomy and had the op on the 9th of March. It all went really well and am recovering really well too. BUT on Friday I got my pathology results back and the nodes tested positive so I'm back to get more out this Thursday. Am confused and terrified and devastated. The nodes looked clear in the ultrasound but are not. What's does this mean? Does it change my prognosis? Has this happened to anyone else?
My name is Laura and I was diagnosed with invasive ductal carsinoma in my left breast on the 10th of Feb. I have tiny breast so the cancer covered a large area so a mastectomy was necessary. I opted for bilateral mastectomy and had the op on the 9th of March. It all went really well and am recovering really well too. BUT on Friday I got my pathology results back and the nodes tested positive so I'm back to get more out this Thursday. Am confused and terrified and devastated. The nodes looked clear in the ultrasound but are not. What's does this mean? Does it change my prognosis? Has this happened to anyone else?
20 Replies
- melclarityMemberJennie you are so right after having been through a recurrence amd 6yrs of this. Lumpectomy is the only way of knowing correct pathology ive neen through it all, needle biopsies, core biopsies all useless. Never again. Generally if its a large tumor or more than one, chemo would be first there's so many variables of treatment. Its a heartwrenching journey and not easy. As i recover from a mastectomy diep flap recon i can say if ever faced again somethings id do different. Glad i have my right breast and am moving forward now. Every emotion possible is so normal as you learm to navigate your path. Day at a time ladies. X Melinda
- lgray3911MemberThanks for sharing your story Jennie what a shocker! I can understand why you're angry. I am like you and am trying to educate myself as much as possible to ensure I am making informed decisions. I am a teacher so knowledge is power in my eyes. I think we are all in the same boat when it comes to what the future holds but you just need to focus on the now and get through each day with the eye on the prize which is being cancer free. One day at a time! Sending big love to you too xxx
- UnicornkissesMember@lgray3911. Yes, I had a similar scenario.
went in for a lumpectomy and bilateral reduction thinking I would then go on to radiation and possibly hormone therapy and everything would be straightforward.
The surgeon appointment after surgery with the pathology results turned that on its head and gave us so many unanswered questions that our heads were in a spin.
Instead of one small lump and a tiny questionable one I had two large lumps and cancer cells scattered all through my breast and one positive sentinel node. (Two showed blue with dye, the other was not affected)
This completely changed my treatment plan and my cancer stage.
Grade 2 ER+ Ve PR +Ve HER2 -Ve
provisionally stage 11B
I had to have Chemo because of the positive node. I have had one dose so far and another 5 to go.
I do have to go back for a mastectomy and lymph node clearance to see if any other nodes are affected but my surgeon wanted me to have Chemo first.
I found researching everything really helped me. I have a need to know exactly why and how I am being treated, and I found that the knowledge made me feel more in control and a little less frightened.
I have had to accept the incorrect mammogram and ultrasound and biopsy that preceded my lumpectomy, though I will still push for more information in the future when my treatment is done as I still have one good breast that I am thinking of keeping.
it has been over 3 months since my diagnosis and I am still struggling with acceptance of what I am faced with, anger at a large part of it, fear and uncertainty about the next stages of treatment and what life holds when it has all finished.
I think it is to be expected considering how much is at stake,
With big hugs for you,
Jennie - SoldierCrabMember@lgray3911
it is ok we dont know what you mean swear!!!!! FUCK you cancer is not a swear word it is a venting word.... ;) - Brenda5MemberYep I copped the same little positive node and had to go back to surgery for more to be taken. Little technical hitch they hadn't told me about and I was sooooo p'eed off it wasn't funny. I went for a walk to cool off. It took 5kms before I had settled. Then of course I had to turn; around and try to make it home lol. Lucky my son came as search party. We had a really nice time chatting on the way home which brought us closer as a family. Every cloud has a silver lining, you just have to recognise it. ;)
- lgray3911MemberSorry probably not supposed to swear on here woops!
- lgray3911MemberGirls thank you all for the info and support. I was devastated on Fri and Sat mainly because I was in shock and had not factored that into my plan of action. I am a very logical person and a bit OCD so had got my head around 3 stages; surgery, treatment then reconstruction. So this threw me!! I picked myself up on Sunday and am ready for round 2. Am Irish and have 2 small boys so I know I'm strong And they are my motivation! My husband has been a huge support and is good at picking me up when I'm down even though he's not used to it because I am so strong and independent usually. Anyway that's a bit about me. Thank you all so much again and Fuck you cancer
- InkPetalMemberSometimes it's more useful to take a step back and let things progress around you, just because stressing over them won't change the outcomes. Like someone's thrown a stone in the still lake you were painting and now all you can really do is watch the ripples settle.
It sounds like you're staying completely informed and are really interested in how it all works, so you are keeping yourself on the best track for yourself that you could possibly be on. :heart:
Please keep us up to date with how you're going. - melclarityMemberUuuugh! Ok, totally get your frustration, gee Id be annoyed! I honestly don't know, but if there are more absolutely better out and then you can plan for a concrete treatment and know where you are heading. Its so difficult right now, so one step at a time, its hard because you put yourself in their capable hands, so I know for me having confidence in my Specialists is so important. Sending a huge hug! Its crap! but one thing at a time as your direction becomes more clear! Hopefully some others can help as to how that happened...Melinda xo
- lgray3911MemberThey did do the dye and only 2 showed up??? Cancer is ER + 30% PR - HER2 +