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- noosa_blue150MemberMepitel is applied first session of radiotherapy and usually remains on for the following weeks of treatment . Nursing staff may fix up edges if they lift but generally it’s not removed until,treatment finished . One needs to treat carefully ( don’t get area soaking wet so no swimming, try to,avoid area when showering , don’t get hot amd sweaty )
Great product , reminded me of extra thick gladwrap adhering to skin. I had a lumpectomy and most of,it stuck well to left boob, only ended up,with slight radiation rash on front chest wall NOT a burn . - 4CocoMemberThank you @Abbydog It's great to hear that not everyone has the N&V issues - I'm hoping that will be so for me too ... or that the drugs sort things out asap. I've read mixed experiences here regarding the Cold Cap - I get migraines from time to time and unsure if the Cold Cap treatment would be a trigger for them to occur. Did you use Mepitel during the R/T sessions or immediately after each session?
- AbbydogMemberThere has been some very good tips here above.
I'm here to say, not everyone gets nausea and vomiting with Chemo.
I know that I was one of the lucky ones.
I took one anti-emetic the first time I left the house, just in case.
I had no nausea, and did not take any anti-emetics after that.
I did the Mastectomy, Chemo EC x4 and Taxol x12, R/T x25
It is not like the movies. Even if you are unlucky and do get the N &V, you will be given the drugs you need.
Take them, and report if they do not work, to your Onc or Chemo nurses.
I did have other side effects, but with the advice given, they were all manageable.
I did not lose my hair. I would have with the Chemo I had.
But I used the Cold Cap very successfully. If it is available to you give it a go.
.I recommend Mepitel during R/T, I had no burns.
Ask me any questions, if I can help you. You can do it via private message.
All the best. - 4CocoMemberHi @Mazbeth Thank you for your suggestions - fruit tingles and biotene seem to be the little stars in keeping mouth fresh. Yes agree - treating team don't know if they don't know. And yes I've started seeing @Cath62 "liquid gold treatment" the thing to focus on.
- MazbethMemberHi @4Coco there is lots of great advice here - I know some things that were said to me 2 years ago were so incredibly helpful.
Just a couple of things to add -
* fruit tingles are great for freshening up your mouth - it must be the bicarbonate soda in them. I munched my way through many packets.
* do whatever feels ok - strolls, having a smoothie at 2am, lying on the couch - just be kind to yourself.
* don’t wait to see if nausea passes - take the meds. I never was physically ill and I put that down to taking the meds and not letting any feelings of swirling in my stomach escalate.
* I gave over to the process. Like @Afraser I did a bit of counselling at the start - incredibly helpful and really got my head in the game.
* as @Cath62 said, I imagined the chemo as the liquid gold I needed to knock out anything rogue - it really changed my perception of what was happening. I then got on with the business of treatment. Thankfully there is chemotherapy and it is now individually targeted for the best results. Even in the 18 months since I finished treatment, things have changed.
* I bought a little bottle of Biotene spray (mouth moisturiser) and put it in my hand bag if my mouth was dry.
* Tell your treating team if you experience any side effects as they will definitely be able to help, but ‘they don’t know if they don’t know.’
Take care 🌸 - 4CocoMemberHi and thank you @Keeping_positive1 for your suggestions and no I'm not feeling inundated with info provided from group members. It's not quite the same as getting a heads up for a trip of a lifetime but if you have things in place and a to do/must have list then fingers crossed "this trip" will be as good and as stressless as it possibly can be. Congratulations on the new you, enjoying your retirement life.
- I kept 2 litres of water in a jug on my kitchen bench as suggested to remind me to drink it throughout the day. I also did up the level just before my chemo on that day so to have extra hydration. Another thing a nurse friend who had just gone through chemo suggested was to use Biotene mouth wash, and QV wash instead of soap. I also bought kenolog from the chemist in case I got any ulcers, but I didn't get any, one plus! It was suggest to use a soft toothbrush, like a childrens one, so I used that also, and I still do to still day, don't want to remove any more enamel from my aging teeth.
Like @Afraser I had anti nausea med throughout AC, that is the 4 sessions three weeks apart, I was given a steroid tablet and by memory I think I had them for three days in a row after the chemo day. Then on the 12 weekly paclitaxol I didn't require any steroids (anti nausea meds).
For myself I wasn't able to work through perhaps mainly because of the nature of my job, and I never returned to work and just formally retired in May this year.. yippee. Some do find their identity is wrapped in their work, for me it wasn't the case, although I do miss the clients, because I loved my job.
Another thing I found was because I am on my own I made sure I had everything organised and at least 3 days of meals in the freezer, and on the day of chemo my support friend who drove me there would stop so I could pick up a salad for an easy meal that evening. I didn't have any help in the house, and I managed mainly because I am a highly organised person and used to doing everything on my own. But of course, if I had fell down sick I would have wanted and asked for help.
Not to scare you, but I had a backpack by the front door in case I got a temperature and needed to rush to hospital, that never happened, thankfully. Good to be prepared in case, and I had told family if it happened in the middle of the night I would inform them in the morning, nothing they could do for me in the middle of the night.
Keep a thermometer handy, but they will tell you that at your chemo education session if you are going through the public system. You will get through, as did many of us, and we hope we haven't inundated you with information. Best wishes and keep us posted. Take care. xx - Mez_BCNACommunity ManagerHI @4Coco, while I cannot top the practical advice of your fellow members lived experience above. I thought I would share the My Journey article 'Questions to ask when diagnosed with early breast cancer' ; these are suggested questions that others have told us are helpful to ask https://myjourney.org.au/article/2090
- 4CocoMemberHi @Afraser Thank you for your tips and shared experiences. Good to hear you didn't suffer with nausea - I've got everything crossed I follow in your footsteps. I think the hair suggestions both you and @Cath62 are ones that I've already ticked in my brain to do sooner rather than have to deal with daily loss on the pillow each morning - that would be too distressing I agree. Yes I feel like I'm getting closer to a cross roads point as to what do I want to do "after treatment." One step at a time for now. Smiles to you*!*
- 4CocoMemberHi @Cath62 Many thanks for all your wonderful suggestions. Will definitely try very hard with the Golden Light thinking - I understand that one of the drugs is known as the red devil. Nausea and sickness are my main worry - had a horrible time during meno with those two. Smiles to you*!*