@Pink I'm sorry to hear of your story and yet totally understand exactly what you are saying. I was first diagnosed in 2011 DCIS left breast, I had a lumpectomy, radiation and Tamoxifen for 4 years. In 2015 I had a recurrence in the same breast, but this time IDC 2.5cm Tumor within a year in between my checkups, ER+ Stage 2, Grade 3. Nodes were clear. I had to have Chemo and no radiation as couldnt have it twice on the same side. I then went onto Arimidex January 2016. Due to recurrence my Surgeon and Oncologist recommended a Mastectomy, so a year after treatment finished in February 2017 I had a single mastectomy/diep flap reconstruction. I had genetic testing and it was negative, they all agreed that a double mastectomy wasn't warranted and I certainly didn't want it.
I have to admit, hindsight is a beautiful thing...although with the recurrence I couldnt have avoided chemo even if I had of done a Mastectomy then. I found chemo incredibly difficult and I'll be honest it's not something I think I'd do again if I have a choice. For me having been through it all, if I were unlucky again I would absolutely opt for a Mastectomy/recon again and no treatment especially if it is early. I only say that as I did aggressive treatment for DCIS in 2011 and it came back anyway.
Lots to think about, but I absolutely agree and understand how you are feeling and thinking of how to proceed. Big hugs you know you're body and you know what you can and cannot do.
Melinda xo