hi all, I have just recently been diagnosed with what they are saying is stage 2 breast cancer. Mastectomy and chemo is needed. I have a strong family history so they have been showing concern and the need to act promptly. Friday just gone I had my ct scan and bone scan but have not heard any results from this. The medical team at my hospital had their appointment today and called me to organize my appointments to get all results and hoping they will have a plan for me. Terrified that the bone and ct scan has shown that the cancer is else where even tho mammogram and ultrasound showed no spread to lymph nodes. Just wondering if anyone else in similar situation?worried sick!!

Thank you so much for sharing your stories. It has left me with a calmer feeeling for my day ahead. Off to the hospital for my results today so I will let you know how you I go xxwish me luck x

Hey@Mic80 hope today was OK. I’m a recent joiner of this forum and think the support, care, wise words, and humour, even when things are not going ok, from everyone posting are amazing. I must admit I do a fair bit of Googling, mainly trying to decipher some of the “peer-reviewed” articles. But there is a lot of changed information over the years - ultimately leading to better treatment and outcomes. So don’t look at anything over 5 years old!! The waiting for results is the worst. We’ve all been there. Xx

I am so Sorry to see you here, @Mic80 - but we'll help you get thru these early days, as we've been there ourselves & know how it feels. It does your brain in a bit too .... try not to google too much info - everyone's case is different & you could be reading the wrong stuff.Try not to pre-empt the scans/tests ..... it is what it is - and your medical team will explain it all to you & help you deal with it. Do you have a close friend or relative to attend the meetings with you, for support and an extra set of ears? It takes the pressure off you a bit - and they can drive you to & from appointments too. My sister in law has come to all my important meetings, including my 1 year review last week with the surgeon - and I recorded a lot of them on my phone too. My surgery was in Jan 18.Take lots of deep breaths .... you can do this. Try & take one day at a time. Feel free to scream & shout & react in any way that you feel - all that is totally normal too. You'll have your ups & downs - but it will get better, once the surgery is over.I hope you have family & friends around to help support you - just the waiting between appointments & for results is one of the worst bits. They won't really know about the node involvement until after the surgery & the pathology is done (another wait!) If any of your friends offer 'help' - maybe suggest a frozen meal or two, to help get you thru after your surgery, as you won't feel much like cooking to start off with and also may not be up to driving for a wee while either, for getting in supplies?Have you been assigned a breast care nurse yet? They are a great support & fountain of knowledge. They can help organise your appointments & followups .... and a sympathetic hear as well. Throw up any question that you have here - we'll do our best to answer it for you.Take care, thinking of you xx

Hi there @Mic80. I'm so sorry that you've found yourself here in a group nobody wants to join. I'm not in your position now, but was almost three years ago. I was diagnosed with stage 3 grade 3 invasive ductal carcinoma with spread to one node. I remember the horror, fear and disbelief as if it were yesterday. The bowel clenching fear between having my full body scan and bone scan and being at the multidisciplinary team meeting to discuss the results, was just awful. Your feelings are entirely normal, although horrible, and nothing anybody can say will allay those fears until you hear the results and have a plan of action. Others, I'm sure will add their comments, but in the meantime, I'm sending you a big cyber (((hug))). Ally.

The fear is so overwhelming @mic80. We get it. We've been there and come out the other side. I was diagnosed with Stage 2 lobular carcinoma on 5th December 2017. Well, I say I was diagnosed with it but at the time, all I knew was that it was lobular and there. It had spread to 3 nodes but my doctors believe that they have got it all. I went on to have chemo and rads and am now on Letrozole. I also have a family history of BC. As @allyjay says, it is what it is and now you are doing something about it. Try not to overthink it (hah!) and avoid Dr Google if you can - remember that a lot of what you read there is old. This is probably about the hardest time emotionally as you've been hit with a sledgehammer of news. Once you have a plan, while you won't feel overjoyed, you will feel more in control of things. Take care and remember we're here and we get it.

scared. | BCNA Online Network

18 Replies

Sister
Member
7 years ago
Right! Now you have plans you will feel like you're more in control and moving forward.
kmakm
Member
7 years ago
That's wonderful news @Mic80! I'm so pleased for you. What a relief. Onwards and upwards. K xox
Mic80
Member
7 years ago
Thank you all so much for you reply’s xx
i had my appointment yesterday and all other scans are clear as far as they can tell. They have diagnosed it as stage 2 invasive carcinoma. I Have a node removal coming up to double check it is not in the lymph nodes and then Off to plastics to decide about mastectomy! I have def decided double but not sure whether implants or the tummy fat option.... any ways there will be surgery then chemo!! This sure is a roller coaster and trying my best to stay positive for my kids but there are sure some dark moments. So reassuring that there is this forum to have some chats with people going through the same thing (although I wish you all weren’t xx)
thanks again xx
jennyss
Member
7 years ago
Dear @Makday,

Best wishes to you too! from jennyss in Western NSW
MvB
Member
7 years ago
Hey@Mic80 hope today was OK. I’m a recent joiner of this forum and think the support, care, wise words, and humour, even when things are not going ok, from everyone posting are amazing. I must admit I do a fair bit of Googling, mainly trying to decipher some of the “peer-reviewed” articles. But there is a lot of changed information over the years - ultimately leading to better treatment and outcomes. So don’t look at anything over 5 years old!! The waiting for results is the worst. We’ve all been there. Xx
kmakm
Member
7 years ago
Hi @Mic80. Thinking of you today and hoping it all went well and that you got good news. Whatever happens, a plan will be emerging and you'll start to feel a bit better. That horrible panic and dread will subside. Big hug, K xox
Doin_it
Member
7 years ago
Thinking of you today @Mic80. Sending hugs
rose
Member
7 years ago
Good luck Mic80. One step at a time. Good advice not to go to Dr Google - but also limit what you read on this site. While this forum is wonderful, and supportive, there are a fair few scary stories which may not help your mental health. So, just learn what you need for the stage you're at.
BlackWidow
Member
7 years ago
Thinking of you today @Mic80.
The ladies have said it all above and you know you can always come on site for information and support.
Let us know how your appointments go.
Sending big cyber hugs
Anne <3
Brenda5
Member
7 years ago
The ct and bone scan are called staging. The specialists use it to come up with a treatment plan. The bone scan in particular is handy as years down the track you may have another one and it will be compared to the first one to see if you have any osteo troubles brewing.
My sis in law had pains in her side and they thought maybe a hidden hernia so had a ct scan. They found cancer in a kidney. They did a quick op, took the kidney out and she never had any more cancer happen. Never did find out what the pain was in terms of the hernia though. That scan saved her life.

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scared.

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