Forum Discussion
junita55
8 years agoMember
Responding to my diagnosis while living in remote outback South Australia
Just over 4 weeks ago I was diagnosed with breast cancer. I am off to have surgery next week so I am trying to get my head around it all. I live in the remote outback town of Andamooka. My hubby has bipolar and will not cope going to the city so he will be staying home. I will be almost 700kms from home. There is a plane that flys out of Olympic Dam but I will not always be able to catch it. It is mainly for BHP staff and they only have a few community places. So what I want to know is has anyone accessed Angel flight? I realise it is early days but trying to work things out.
14 Replies
- onemargieMemberI’ve sent you a PM. Margie x
- SoldierCrabMemberKeep us updated please @junita55 all the best with your results on the 20th.
- primekMemberMy personal favourite was Greenhill lodge. Just further up on same road is a preferred dentist for medibank private if you have that. Do speak with social worker at the lodge if you can as sometimes there are funds for people with additional expenses. Greenhill is my fav. As I found the kitchen facilities much easier to access and the rooms although a bit dated are bigger with a full size fridge. They even have a big family room if there for a while . Kath x
- SisterMemberIt's hard enough having treatments - much worse when you're so far away.
- junita55MemberHi Sister
I am doing okay have had surgery they took out 35mm cancer tumour and two Lymph nodes. I was impressed with the surgical team all women bar one fellow. It was a real girl power feel.
I have been home recouping and got all Bar one of the stitches out today by the local RFDS nurse.
Off to Adelaide again 20th of this month to see Radioligist and find out when I start radiation therapy. I will try to stay at Flinders Lodge over the time I have that done. The worst thing to happen is I got a tooth ache and abscess so had to have antibiotics and heading to Port Augusta next week to get the tooth out. That has hurt more than the surgery.
I think when I get to Chemo that will be the hardest for the distance. I'm also going broke with the back and forwards air flights. PATS does help a bit but there are always lots of extra costs.
Cheers
Junita - SisterMember@junita55 Just wondering how you are going? It's such a long trip from Andamooka to Adelaide.
- Beryl_C_MemberHello Junita55 - I agree with Brenda5 - keep that McGrath nurse working for you particularly if you feel exhausted, overwhelmed, tired or unwell.
My heart goes out to you - I have lived in 'the bush' but now live in the city just a five minute drive from the hospital and treatment centre. I know 'bush folk' are resilient but use whoever and whatever you can to ease the stress and exhaustion that can pop up and 'bite you on the bum' at the most unexpected times. I learned that its ok to let others fight for you.
xBeryl - Brenda5MemberI knew absolutely nothing about breast cancer when I got it and I devoured the journey kit in a couple of days. A breath of fresh air it was and I learned my cancer was treatable and no I wasn't going to wither up and die in a few months. Keep that McGrath nurse working for you. They are the ones who arrange stuff when you are feeling under the weather.
- primekMemberMy favourite place is Greenhill lodge. Hope all goes well and fingers crossed with angel flights. Is your surgeon Dr Kollias? He is very good at trying to coordinate care to minimise the travel. The trickiest bit is surgery...pre op one week before and follow up 10 days later. I went home in between because of my kids. The hospital can organise a District Nurse to visit you at Flinders if needed for drains plus Judy might even pop out. You can call them or email them with any queries. Fantastic nurses.
- SisterMemberGood luck to you @junita55 . Sounds like you were diagnosed at the same time as me but so much harder for you being so far away. I believe that Cancer Council accommodation are good as a family member had to use them a lot a couple of years ago.