Posted on behalf of Ildiko 22/07/17
"I have just been diagnosed and my heads still in a tailspin. I'm 68 and my birthday's 28 August. Appreciate contact."
Forum Discussion
Hello Ildico
So sorry you have had to join this club but this website is the right place. When I read the posting I immediately thought to write and say about notes, questions, taking someone with you - then I read the posting by primek and she has said exactly what I would tell you. You are fortunate to have found this site early. Write every question down and don't leave any appointment until someone has answered them for you. NO question is too small. Ask ask ask. Whilst your head is in a spin you may hear/comprehend things incorrectly so it is good to have someone with you to take notes and understand what is happening. If something does not feel right, ask your specialist team - that is their job BUT it is your body and you know it best. All the best for your weeks ahead - and keep us informed as we are here for you.
Big hugs Summer :-)
So sorry you have had to join this club but this website is the right place. When I read the posting I immediately thought to write and say about notes, questions, taking someone with you - then I read the posting by primek and she has said exactly what I would tell you. You are fortunate to have found this site early. Write every question down and don't leave any appointment until someone has answered them for you. NO question is too small. Ask ask ask. Whilst your head is in a spin you may hear/comprehend things incorrectly so it is good to have someone with you to take notes and understand what is happening. If something does not feel right, ask your specialist team - that is their job BUT it is your body and you know it best. All the best for your weeks ahead - and keep us informed as we are here for you.
Big hugs Summer :-)