Posted on behalf of Ildiko 22/07/17
"I have just been diagnosed and my heads still in a tailspin. I'm 68 and my birthday's 28 August. Appreciate contact."
Forum Discussion
Hello @Ildiko, so sorry to hear of your diagnosis but welcome. I'm so glad you have found us early as there is so much support and information here. We might all have different diagnoses and treatments but we have all been where you are and understand how overwhelming these early days can be. At the moment you have no choice but to go from test to test and try to absorb all the information being given to you. Once you have surgery or at least have some pathology results you will be given a treatment plan and you'll feel more in control.
I found it helpful to keep a list of all the questions I came up with between appointments. With so much going on it was really easy to forget to ask something when sitting in front of the surgeon. There's no such thing as a silly question and it gave me a bit of control to tick them all off!
The My Journey kit also has a section to keep track of your appointments and expenses.
Keep in touch Ildiko and let us know how you are doing. You are most definitely not alone, we are all here for you. Jane xx
I found it helpful to keep a list of all the questions I came up with between appointments. With so much going on it was really easy to forget to ask something when sitting in front of the surgeon. There's no such thing as a silly question and it gave me a bit of control to tick them all off!
The My Journey kit also has a section to keep track of your appointments and expenses.
Keep in touch Ildiko and let us know how you are doing. You are most definitely not alone, we are all here for you. Jane xx