Hi @Dina, Sorry to see you here ..... I don't think we have a specific Phyllodes Group here (yet) .... maybe you can ring the Helpline tomorrow & have a chat with them (in the blue banner at the top of the page?)
We do have members with Phyllodes but it is one of the more unusual BCs - it would be great if you could have your own group, to discuss your issues in a totally private setting xx @Mez_BCNA may be able to help there - and also give you your own 'thread' for more dedicated replies.
This info may help you ... with more pages to check out, half way down xx
https://www.breastcancer.org/symptoms/types/phyllodes/When you have a spare 10 mins, Check out this link on the 'rest of the blog' ... there is also a link down the bottom to some 'tick sheets' that may help formulate questions for your team ...
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latestTake care & all the best with your ongoing appts - Definitely see if you can have a buddy with you at your appts and consider recording it on your phone for later reference xx