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I saw my oncologist this week for a treatment plan. Due to my history, Hodgkins lymphoma 1998 and non Hodgkins lymphoma 2008 , sister and other family members with Breast Cancer, and the markers found in my lump she wasn't sure if Chemo would be a beneficial option. She has suggested Oncotype Testing to give a 100% guarantee that Chemo is needed or not. I have no worries with this as I'd rather not have chemo if it is not needed. What go me mad was the cost of this test $5000!!!! There is no Medicare rebate and not covered by my Health Fund, I was fortunate that we were able to juggle a few things around to pay for this - but what about those who can't afford this. When the information provided isn't that clear and it's a matter of a coin toss whether to have or not have chemo what would you do? I know it makes it sound like my oncologist isn't giving me clear advice but she is very and good and has provided me with lots of information, hence taking the option to do this testing. Cancer is hard enough as it is without the added financial strain of such an expensive test. There are so many other subsidised tests and programs why isn't this one. Apparently we are the only Western Nation where the government doesn't provide a rebate. I have wrote to the Minister for Health a strongly worded letter and suggest that everyone do the same.","kudosSumWeight":0,"postTime":"2022-03-17T04:05:55.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:financial-impact","text":"financial-impact","time":"2025-03-25T05:02:17.441-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:genomic-testing","text":"genomic-testing","time":"2025-03-25T05:02:17.439-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:29256_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":512},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"I was diagnosed with Early Cancer - Oestrogen Positive - 3 February 2022. Since then I have had surgery to remove the lump.
I saw my oncologist this week for a treatment plan. Due to my history, Hodgkins lymphoma 1998 and non Hodgkins lymphoma 2008 , sister and other family members with Breast Cancer, and the markers found in my lump she wasn't sure if Chemo would be a beneficial option. She has suggested Oncotype Testing to give a 100% guarantee that Chemo is needed or not. I have no worries with this as I'd rather not have chemo if it is not needed. What go me mad was the cost of this test $5000!!!! There is no Medicare rebate and not covered by my Health Fund, I was fortunate that we were able to juggle a few things around to pay for this - but what about those who can't afford this. When the information provided isn't that clear and it's a matter of a coin toss whether to have or not have chemo what would you do? I know it makes it sound like my oncologist isn't giving me clear advice but she is very and good and has provided me with lots of information, hence taking the option to do this testing. Cancer is hard enough as it is without the added financial strain of such an expensive test. There are so many other subsidised tests and programs why isn't this one. Apparently we are the only Western Nation where the government doesn't provide a rebate. I have wrote to the Minister for Health a strongly worded letter and suggest that everyone do the same.","customFields":[]},"Conversation:conversation:29256":{"__typename":"Conversation","id":"conversation:29256","solved":false,"topic":{"__ref":"ForumTopicMessage:message:29256"},"lastPostingActivityTime":"2022-04-22T00:14:37.000-07:00","lastPostTime":"2022-04-22T00:14:37.000-07:00","unreadReplyCount":20,"isSubscribed":false},"ModerationData:moderation_data:29256":{"__typename":"ModerationData","id":"moderation_data:29256","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:29256_1":{"__typename":"Revision","id":"revision:29256_1","lastEditTime":"2022-03-17T04:05:55.000-07:00"},"ForumReplyMessage:message:29264":{"__typename":"ForumReplyMessage","id":"message:29264","conversation":{"__ref":"Conversation:conversation:29256"},"author":{"__ref":"User:user:19566"},"revisionNum":1,"uid":29264,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Oncotype Testing","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:29264"},"parent":{"__ref":"ForumTopicMessage:message:29256"},"body":"JUST ADDING MY 2cents WORTH (Rant) to this thread Oncotype testing wasn’t even offered to me might not have been around in 2016 when i was first diagnosed. Not that i had or have that sort of cash to spare anyway i did the 1st chemo and 8 rounds of taxol before pn reared its ugly head.
At the scan just prior to surgery it was discovered the tumour hadn’t shrunk much anyway. Now metastatic so I’m still costing the government heaps.
They just don't get it. Thank goodness for BCNA and CC and others For fighting and getting what we do have in the medicare system.
I spent 11 months on newstart/ jobseeker while under treatment 20 weeks over the chemo stage that was $6000 worth of payments. When like you said i could have been off work for a shorter time and earned a wage instead Of living in poverty and depleting my super and now. I’ll be on a full centrelink age pension costing tax payers even more.
I just don't think they get it. I know its not an endless supply of $ In government budgets but there is so much waste Things we can live without that gets $’s wasted on.
Im still on jobseeker top up. Due partly to the ravages of treatment on my poor body. The only way i will be able to give back to this country of ours when i do get to retire is volunteering my time to give back to the ones that helped me. Eg bcna and cancer council i could go on and on but i wont Cancer sucks bad to anyone that gets the big C of any sort End of rant
","body@stringLength":"1582","rawBody":"JUST ADDING MY 2cents WORTH (Rant) to this thread Oncotype testing wasn’t even offered to me might not have been around in 2016 when i was first diagnosed. Not that i had or have that sort of cash to spare anyway i did the 1st chemo and 8 rounds of taxol before pn reared its ugly head.
At the scan just prior to surgery it was discovered the tumour hadn’t shrunk much anyway. Now metastatic so I’m still costing the government heaps.
They just don't get it. Thank goodness for BCNA and CC and others For fighting and getting what we do have in the medicare system.
I spent 11 months on newstart/ jobseeker while under treatment 20 weeks over the chemo stage that was $6000 worth of payments. When like you said i could have been off work for a shorter time and earned a wage instead Of living in poverty and depleting my super and now. I’ll be on a full centrelink age pension costing tax payers even more.
I just don't think they get it. I know its not an endless supply of $ In government budgets but there is so much waste Things we can live without that gets $’s wasted on.
Im still on jobseeker top up. Due partly to the ravages of treatment on my poor body. The only way i will be able to give back to this country of ours when i do get to retire is volunteering my time to give back to the ones that helped me. Eg bcna and cancer council i could go on and on but i wont Cancer sucks bad to anyone that gets the big C of any sort End of rant
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