Oncology in the bush.

@jan61 If just having the treatment isn't enough - then this sort of shit comes to mess with your head.  Fingers crossed that things go smoothly today.

Thanks for the support. Nothing much is running smoothly. From the very start things got mucked up. @Annie C I do believe she may be correct. The system is compromised by a myriad of things made worse by distance.

The BC nurse got back to me for which I am grateful. The meds are sorted. I just need to stay alive until the second cycle 😅😂🤣👍

Oh shitbags Jan! It can be very difficult to be in a hospital setting with no 'owner' Who's patient is this? Ummm. The bloke we can't contact? It can be both frustrating and dangerous and going home with a clot in your neck (with or without drugs) surely doesn't fit into the best practice basket. Fingers crossed for you, no one needs this stuff. Mxx

@jan61
I had a BC nurse tell me that my treatment is "compromised" because I live remote!

Very reassurring. 

I still, after 18 months, don't know how to put that comment into the context of my ongoing treatment and followup care.

@jan61 How effing insensitive!

Just put a call into the BC nurse who called me tricky. She will call back this arvo after checking a few things out. I have ceased the aspirin. 

And picked up up two tablets from the chemist as that’s all they had. I will get the rest tomorrow.

people keep saying "..... oh you poor thing....”  and giggling. FMD 

@jan61
Discuss with the Oncology unit and ask what is the plan when things go awry. Hopefully it's smooth sailing from now on but you need reassurance 
Take care

Hi @jan61. You poor thing! What a dreadful day. None of that is 'right'. I am not a medical person but I know DVT is not to be taken lightly. Is there someone you can call today to ask about it?

@jan61 Wow. I wouldn’t feel too confident either. It sounds like they got it right in the end but what a pain. I think a me day is in order for you my lovely. Anywhere near you do hand and foot massages? A bubble bath would be nice. A block or two of your fav chocolate. Whatever you want today you should have. Big hugs.

So I’m really struggling with what happened yesterday. 
I  was day 10 of cycle one. Went up to the local district hospital to get my blood work done. Wandered down to ED to see if someone could check my portacath. It’s been painful. I can’t turn my head easily. I have swelling and bruising. Just doesn’t feel right.
The nurse who answered my query looked confused.
There is no dr available. None on call or on duty.

She called up one of the chemo nurses that was working that day who took one look and said... that’s not right. Maybe an exray? I’ll ring the oncology in Orange and see what they say. It’s 1130 and I have been there since 10. 

My oncologists day day off so they have spoken to the BC nurse at orange who said an ultrasound... could be thromosis. I toddle down to medical imaging. 1230 and I still haven’t been seen. I’m starting to try and catch the eye of Russell the stand in ultrasound guy.... Jan’s waving over here!
its now 1300 .... Jan’s tired getting a bit dry and getting crabby. Yay Rusell appears! He asks me what they are looking for because it hasn’t been listed on the request form written by the nurse. I said dvt, thrombosis. 
He tried to brush that off but started to do the ultrasound. As soon as he put the gadget on my neck.... there it was. An 8 cm clot in my jugular going down to the sub clavicle.  He had to swallow his words...
it’s now 2:30....  no one knows what to do. They try to contact an oncologist but are put onto “ blood dr”.... who is going to prescribe 50 mg Riveroxaban BD. Umm what? Someone points out that 50mg is a huge dose. Ok the mistake has been picked up.... but I’m still sitting in ED.
3:30. Kids coming in. I’m going home. Ring me when it’s sorted I’m happy to come back up. They ring and ask me to come up at 4:30 and I do. They are still waiting on the script? WTF? I point out the chemist will be closed in 1/2 an hour...... 

i finally get get the scripts from an unknown dr. He seems to be a part of the rural health something or other. Where the hell is Quirindi? And two doses until the chemist opens in the morning. 

Wowzas. I am buggered. This is stressful. I am not feeling confident.