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I went to the supermarket the other day and felt like I was having an out of body experience. I have anxiety, not helped by lack of sleep, although that is better after I spoke to a GP and refused to get off the phone until she prescribed a sleeping tablet, so I've had a few more hours sleep since Sunday. I shake, inside and out. I feel numb, scared and when I set down to doing some work, I lack confidence. So my question to you is, how did you manage when you first learned you had MBC? What did you do to help yourself? Any suggestions are warmly welcomed. Thank you sisters","kudosSumWeight":0,"postTime":"2023-02-21T00:59:03.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:39012_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":452},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hi everyone. I thought I'd get on to share that after my MBC diagnosis 2 weeks ago, I am struggling. I'm on Ribo/Fulvestrant combo for treatment and two weeks in am doing okay physically. I wish I could say the same mentally. Having read many of the posts, I'm ashamed to want to post at all, but I wanted to reach out to see how others coped mentally in those first few weeks. I have had no success getting hold of a psychologist; you have to wait weeks. I feel depressed, sad and have only been able to cry in the last few days, and usually what prompts that is when I ask my best friend how he is coping and I see how he is struggling too. When he says 'I can't fix this' my heart breaks. I went to the supermarket the other day and felt like I was having an out of body experience. I have anxiety, not helped by lack of sleep, although that is better after I spoke to a GP and refused to get off the phone until she prescribed a sleeping tablet, so I've had a few more hours sleep since Sunday. I shake, inside and out. I feel numb, scared and when I set down to doing some work, I lack confidence. So my question to you is, how did you manage when you first learned you had MBC? What did you do to help yourself? Any suggestions are warmly welcomed. Thank you sisters"},"Conversation:conversation:39012":{"__typename":"Conversation","id":"conversation:39012","solved":false,"topic":{"__ref":"ForumTopicMessage:message:39012"},"lastPostingActivityTime":"2023-02-23T16:35:13.000-08:00","lastPostTime":"2023-02-23T16:35:13.000-08:00","unreadReplyCount":22,"isSubscribed":false},"ModerationData:moderation_data:39012":{"__typename":"ModerationData","id":"moderation_data:39012","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:39012_1":{"__typename":"Revision","id":"revision:39012_1","lastEditTime":"2023-02-21T00:59:03.000-08:00"},"ForumReplyMessage:message:39029":{"__typename":"ForumReplyMessage","id":"message:39029","conversation":{"__ref":"Conversation:conversation:39012"},"author":{"__ref":"User:user:19566"},"revisionNum":1,"uid":39029,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Not doing so well","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:39029"},"parent":{"__ref":"ForumTopicMessage:message:39012"},"body":"@LDP. Hopefully one of the Melbourne crew can give you some advice on what’s available in Melbourne for you. Being from Sydney outer west i know nothing about Melbourne Services. The help line is a great place to start.
I would be surprised if anyone on here that didn’t go through the roller coaster of emotions the F/F’s are a my description. Fatigue, Flattened (as in no enthusiasm), Frustrated, Frightened, Forgetful, theres another F that i could insert but for decency I will leave it out.
My medication gives me all those feelings even though i know I’m stable at the moment time seems to drag I’m often checking out Friday Funnies when Im having a down moment and always on the lookout for them to post. Along with the strategies the councillor gave me to use.
Hang in there 💐 LDP
","body@stringLength":"861","rawBody":"@LDP. Hopefully one of the Melbourne crew can give you some advice on what’s available in Melbourne for you. Being from Sydney outer west i know nothing about Melbourne Services. The help line is a great place to start.
I would be surprised if anyone on here that didn’t go through the roller coaster of emotions the F/F’s are a my description. Fatigue, Flattened (as in no enthusiasm), Frustrated, Frightened, Forgetful, theres another F that i could insert but for decency I will leave it out.
My medication gives me all those feelings even though i know I’m stable at the moment time seems to drag I’m often checking out Friday Funnies when Im having a down moment and always on the lookout for them to post. Along with the strategies the councillor gave me to use.
Hang in there 💐 LDP
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Hi I agree with the girls if you are in so much pain contact your surgeons rooms as someone would be covering while your doc is away. Keep raving because this is what this site is about , we are all scared and don't know what to expect after surgery and we need to vent. Take care and call docxx
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Hi I agree with the girls if you are in so much pain contact your surgeons rooms as someone would be covering while your doc is away. Keep raving because this is what this site is about , we are all scared and don't know what to expect after surgery and we need to vent. Take care and call docxx
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Hi! I'm Christine but my post name is Iserbrown after my favourite chooks. There is more to me than just my diagnosis. My photo that I use at present is a statue called \"Ring'O'Roses\" and is situ in our local Cemetery, a place that I administer along with 10 other volunteers.
\n
My treatment was a left breast mastectomy with some node clearance. I have other niggles that are as a result of current treatment but I am well aware that the positives outweigh the negatives. Today I will have another lymphatic drainage massage.
\n
I live with my husband of 38 years on 10 acres and we have chooks, sheep and cows and a cat. Did have dogs but couldn't bring myself to replace them as they were such an important part of our lives and we still miss them dearly, they were 18 and 19 when they passed.
\n
I get comfort from this forum and hope that others do. As we all know we are in this together and our experiences hopefully will help as others as others have helped me.
\n
Take care
\n
Christine xx
","body@stringLength":"1078","rawBody":"
Hi! I'm Christine but my post name is Iserbrown after my favourite chooks. There is more to me than just my diagnosis. My photo that I use at present is a statue called \"Ring'O'Roses\" and is situ in our local Cemetery, a place that I administer along with 10 other volunteers.
\n
My treatment was a left breast mastectomy with some node clearance. I have other niggles that are as a result of current treatment but I am well aware that the positives outweigh the negatives. Today I will have another lymphatic drainage massage.
\n
I live with my husband of 38 years on 10 acres and we have chooks, sheep and cows and a cat. Did have dogs but couldn't bring myself to replace them as they were such an important part of our lives and we still miss them dearly, they were 18 and 19 when they passed.
\n
I get comfort from this forum and hope that others do. As we all know we are in this together and our experiences hopefully will help as others as others have helped me.
\n
Take care
\n
Christine xx
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Very sorry that you're here though. Have you booked in for the Look Good, Feel Better course?? You're breast care nurse or Cancer centre should be able to tell you when it's on near you. It helps with make up tips, wigs etc. Also there is a group specifically for young women that you might like to join - here is the link - http://onlinenetwork.bcna.org.au/group/10-young-women. Above all feel free to ask any questions, have a rant, use the forum as a safe haven for expressing how you're feeling. It's wonderful to be able to get support from people who know what you're going through. Big hugs, and wishing you all the best. Xx Cath","body@stringLength":"678","rawBody":"Hi @Loz R, and Welcome to the forum. Very sorry that you're here though. Have you booked in for the Look Good, Feel Better course?? You're breast care nurse or Cancer centre should be able to tell you when it's on near you. It helps with make up tips, wigs etc. Also there is a group specifically for young women that you might like to join - here is the link - http://onlinenetwork.bcna.org.au/group/10-young-women. Above all feel free to ask any questions, have a rant, use the forum as a safe haven for expressing how you're feeling. It's wonderful to be able to get support from people who know what you're going through. Big hugs, and wishing you all the best. Xx Cath","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-08-10T04:35:49.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:20924_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"parent":{"__ref":"ForumTopicMessage:message:20922"},"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"User:user:18839":{"__typename":"User","id":"user:18839","uid":18839,"login":"socoda","deleted":false,"avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/540/pR9SN5OUVNEOZ.jpg"},"rank":{"__ref":"Rank:rank:39"}},"ForumTopicMessage:message:20922":{"__typename":"ForumTopicMessage","uid":20922,"subject":"Triple + young mum","id":"message:20922","revisionNum":1,"repliesCount":6,"author":{"__ref":"User:user:20186"},"readOnly":false},"Conversation:conversation:20922":{"__typename":"Conversation","id":"conversation:20922","solved":false,"topic":{"__ref":"ForumTopicMessage:message:20922"},"lastPostingActivityTime":"2017-08-10T06:23:10.000-07:00","lastPostTime":"2017-08-10T06:23:10.000-07:00","unreadReplyCount":6,"isSubscribed":false},"ModerationData:moderation_data:20924":{"__typename":"ModerationData","id":"moderation_data:20924","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:20924_1":{"__typename":"Revision","id":"revision:20924_1","lastEditTime":"2017-08-10T04:35:49.000-07:00"},"User:user:20186":{"__typename":"User","id":"user:20186","deleted":false,"uid":20186,"login":"Loz_R","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2017-08-10T02:45:39.000-07:00"}}}}},"page":"/forums/ForumMessagePage/ForumMessagePage","query":{"boardId":"general-newly-diagnosed","messageSubject":"not-doing-so-well","messageId":"39012","replyId":"39029"},"buildId":"Btkyb7T6TeYM9D2gUmiOv","runtimeConfig":{"buildInformationVisible":false,"logLevelApp":"info","logLevelMetrics":"info","openTelemetryClientEnabled":false,"openTelemetryConfigName":"breastcanceraus","openTelemetryServiceVersion":"25.2.0","openTelemetryUniverse":"prod","openTelemetryCollector":"http://localhost:4318","openTelemetryRouteChangeAllowedTime":"5000","apolloDevToolsEnabled":false,"inboxMuteWipFeatureEnabled":false},"isFallback":false,"isExperimentalCompile":false,"dynamicIds":["./components/seo/QAPageSchema/QAPageSchema.tsx","./components/community/Navbar/NavbarWidget.tsx","./components/community/Breadcrumb/BreadcrumbWidget.tsx","./components/messages/TopicWithThreadedReplyListWidget/TopicWithThreadedReplyListWidget.tsx","./components/messages/RelatedContentWidget/RelatedContentWidget.tsx","./components/messages/MessageListForNodeByRecentActivityWidget/MessageListForNodeByRecentActivityWidget.tsx","./components/customComponent/CustomComponent/CustomComponent.tsx","./components/messages/MessageView/MessageViewStandard/MessageViewStandard.tsx","../shared/client/components/common/List/ListGroup/ListGroup.tsx","./components/messages/MessageView/MessageView.tsx","./components/messages/MessageView/MessageViewInline/MessageViewInline.tsx","../shared/client/components/common/Pager/PagerLoadMore/PagerLoadMore.tsx","./components/customComponent/CustomComponentContent/HtmlContent.tsx","./components/customComponent/CustomComponentContent/CustomComponentScripts.tsx"],"appGip":true,"scriptLoader":[]}