Newly Diagnosed

well I am back with no answers as I don't fit in the normal box, all he said is that I have accelerated complex wound and it will take a long time to heal.  He is sending me for more bloods but he is not expecting it to tell him anything.  So now sit back and just wait it out.  Thankfully he decided to bulk bill me which is surprising for a specialist for not any more answers.
Thank you for listening ladies. xx

@shann how did you go with your appointment on Wednesday did you get any answers to help you? 

Best of luck, this has been a terribly disheartening experience for you. Well done for persistence!! 

@shann I admire your dogged persistence. No one can advocate for us as well as we can, even at times like these. Bring on those answers! 

oh @shann I hope you get some answers it is so frustrating when we re not healing 

Hi all back again.
Been going back and forth to the hospital and they take me on and off the pico pumps as the ooze keeps burning my skin.  Now they have given me to a different wound specialist who has taken them off because ..... they don't suit me like statistics say (and I haven't been saying this at all).  So now just putting on a gel with two pads and some hospital underpants so they stay on, wash it every second day in the shower and reapply ...... see you in a week.
So I am still not happy but I did investigate an avenue and with a specialists in infectious diseases (i don't have an infection so they tell me) he is also a microbioligist and have an appointment today.  So let see if paying $200 to see a private person helps at all.  Will let you all know how it goes, if you want to know  that is.  Thanks for the vent. xxx

Thank you @annsan. I asked my breast care nurse for a masseur recommendation. She did some careful research and found a wonderful woman who I now see regularly. It's very gentle but somehow miraculous! I walk out feeling very different from when I arrived. She says she's waking up and resetting my nervous system. Go for it, but definitely get a recommendation from one of your team.

Hi @annsan the massage I had was just a relaxation not remedial or deep tissue.  Very gentle.  My oncologist suggested finding a oncology massage therapist.  I did have to find a position that was comfortable due to the port and scar.  I had the massage when chemo finished and before radiation started which I am now 5 / 20 fractions through.  The massage was so nice.  During treatment-sitting alot and not doing any activity my posture became so bad from tension and stress related to it all.
Maybe ask your oncologist.  I have worked out this a well trodden path and there are many services and support.  There are a few places around Brisbane that offer a kind of 'BC treatment recovery' service with access to multiple services such as physio, nutrition advice, counselling etc.   I hope the beginning of treatment goes well.  xxxooo

Hi @SamJgS I am newly diagnosed TN BC.  I am to be tested for the BRCA gene and my Oncologist said the same as what yours did about genetic testing.  I read that you had a massage.  I have been wondering if it is ok to have a massage whilst undergoing chemotherapy and if so is there a particular type of massage that is better under the circumstances? I will be commencing chemotherapy shortly and will have a port -a-cath.  I live in Brisbane on the north side.  Thank you and I have found your posts to be interesting and helpful along with @kmakm. 

So far my oncologist has advised that genetic counselling only comes back positive in 5-10% of cases.  She stated that a big consieration is the implications for relatives in terms of insurance (i have two teenage daughters)-income protection, life insurance and rather than a bilateral mastectomy having ovaries removed.  So I will be asking the geneticist about all of the above!!!