Forum Discussion
Newly diagnosed metastatic cancer
Hi, I only just got my breast cancer diagnosis 1.5weeks ago and initially it was tentatively said to be Stage 3 due to being grapefruit sized and lymph node involvement. Then a couple of days ago afte...
Hi @Rhubarb21 sorry to hear you’ve joined the mets group. If you haven’t already joined the private group living with Metastatic Breast cancer group come aboard. At the bottom of this thread you should see a groups click on that then the above group usually comes up first just click join and someone will let you in. On there the topics relate to our struggles and successes. My Onc appointment is today and will come away with the referrals for scans etc. hoping for a break off my palbociclib for a bit. All the lesions at last appointment were stable.
As my Oncologist said. There is lots of steps ahead if this regime stops working. Ive been 5 years with mets and still going. 3 years on this drug. The targeted rads on the bone lesions worked though not immediately.
Every scan causes anxiety make sure the appointments between the scans and getting the results aren’t too long. Keep us in the loop.
Make the most of what’s available. I have a dedicated McGrath Nurse who specialises in Metastatic disease
hope you have one
hope you have one