Newly diagnosed metastatic cancer
Hi, I only just got my breast cancer diagnosis 1.5weeks ago and initially it was tentatively said to be Stage 3 due to being grapefruit sized and lymph node involvement. Then a couple of days ago afte...
Forum Discussion
Hi @Rhubarb21, great your son is helping drive you to your appointments. The radium on bone mets really helped me and one bone met just died. So keep that hope going. My oncologist said it's not about where the mets are or how many but it's about whether treatment halts progression so if you have shrinkage or no new mets then everything is working for you.
One of the ladies in the support group i go to has it everywhere. Basically she joked it is easier to tell people where she doesn't have mets. She was diagnosed 11 years ago and still going strong.
There are many treatments now and more being researched. I kind of feel like we just need to keep being managed till more treatments are approved. The drugs approval process needs to speed up for us mets people. We don't have time to wait.
@Mez_BCNA can you raise this issue of slow TGA approval with the policy team. The TGA acted quickly during covid to approval drugs so why can't they review their approval process for drugs for people with MBC? If fact they should look at it for all cancer mets.
My mets journey so far has had some increases and decreases in mets from scans and same with blood markers too. Keep talking to your oncologist and stay the course. Eat well, exercise a bit and stay living in the present moment. It's a step at a time. Thank you for your update.
One of the ladies in the support group i go to has it everywhere. Basically she joked it is easier to tell people where she doesn't have mets. She was diagnosed 11 years ago and still going strong.
There are many treatments now and more being researched. I kind of feel like we just need to keep being managed till more treatments are approved. The drugs approval process needs to speed up for us mets people. We don't have time to wait.
@Mez_BCNA can you raise this issue of slow TGA approval with the policy team. The TGA acted quickly during covid to approval drugs so why can't they review their approval process for drugs for people with MBC? If fact they should look at it for all cancer mets.
My mets journey so far has had some increases and decreases in mets from scans and same with blood markers too. Keep talking to your oncologist and stay the course. Eat well, exercise a bit and stay living in the present moment. It's a step at a time. Thank you for your update.