@Suzie82 I think you are making a good start by documenting what is happening to you, day by day, right from the beginning. We all think the whole business will be seared on our memories forever, but it is concerning how many details we lose. It's a tough ride, and the levels overlap as you get further into it.
I had (and still have) a big folder with a diary in it and sheet protectors to store ALL my test results, appointments, specialist contacts, experiences in hospital. Who was on shift through your chemo/surgery. Who you saw in ED when it all turned to shit. The lot. All the stuff you hope the staff will know if you are admitted to hospital. Or if you have to recall someone's name six months (or sometimes six minutes) after you've met them and explain what they told you to someone who thinks you are high as a kite or deluded.
There is great comfort for some of us, and I suspect you may be one, in keeping track of stuff. As an old librarian who now splits her time between a museum and the building department, I'm a sucker for order when I expect that to be the norm
I still love my folder.14 years after my first diagnosis. I don't drag the original around to every appointment any more, but everything still goes into it.
It's early days, best of luck. Mxx