Forum Discussion
Nattyv63
4 years agoMember
Newly diagnosed. Am I being mucked around by the hospital?
Hi I was diagnosed 4 weeks ago haven't had my biopsy yet...that's next Thursday 16/12. Listening to the Podcast is stressing me out because Charlotte was diagnosed and had surgery within 2 weeks whereas I haven't even had my cancer categorised in 4 weeks. Is this normal? Should I stick with the Alfred Hospital or go to Peter Mac? Everyone around me is saying things like "gee they're taking their time," or "it should be faster than that" but should it be? Is the time lag pretty standard? Their stress is stressing ME out lol I don't have private insurance so going the public route. Glad I found this community. Any advice appreciated.
52 Replies
- Cath62MemberHi @Nattyv63, it is a hard time of year with this happening to you. I was not stage 3 but I would be a bit freaked out too if I had that result. I was bad enough when first diagnosed.
I am sure once all the scans etc are done and te drs have assessed your whole situation they will come up with a plan that will get on top of this. Stage 3 is not a death sentence. Treatment is so effective these days even if stage 3. There are lots of ladies who have lived to tell the story of their treatment and survival.
It is very normal to feel overwhelmed and stressed. Your sister just doesn't understand, how could she when it isn't her experience. It is hard for others to get how we feel and while they all try to make us calm and feel better sometimes we just feel what we feel.
I know you are frightened and so stressed. Perhaps try deep breathing, just focus on that to help yourself. Listen to music if you like that or distract yourself as much as you can to take your mind off it as you can.
It is good that treatment starts soon. Just hard waiting for it. Once treatment starts and they get on top of this you will feel emotionally a bit better. Have you seen a counsellor? Might be good to do that now to get some strategies to help you get through this. We are all different but it really helped me as did the practice of meditation. There are heaps of free meditation on the internet you could try.
Best wishes for a peaceful day and also for tomorrow. - Nattyv63MemberPS start chemo on Jan 7!
- Nattyv63MemberHI all, so my core biopsy came back Stage 3 Er/Pr Posititve IDC. Had the first of the staging scans yesterday (Heart blood pool) and PET and next Friday I have CT on heart, lungs, brain and then a bone scan as well as bloods. Feeling numb, surreal, like it's not happening to me. I actually feel like this thing is killing me and this will be my last Christmas. It's such a weird feeling and no one in my family/friends group understands. I always feel I have to be "up" and "on" and when I was raging the other day my sister told me to calm down. I don't really have anyone HERE FOR ME. Lots of words of comfort, very little action. Blah, over it. Thanks for letting me vent.
- arpieMemberSo sorry it is so sore @Nattyv63 ... I hope it passes quickly, but the bruising may come out a bit more as well over the next few days. :( Try not to overthink your scans .... difficult tho it is. It ‘looks tricky’ but we are are not qualified to interpret them ... hopefully you get your results ASAP and we’ll have fingers and toes crossed for you. xx
Then your team will be able to give you dates and a plan.
This disease really DOES muck with your brain, even more than your body, specially in the early days. Contact our helpline today and they’ll be able to talk you thru it xx
take care - FLCloverMemberI was sore too @Nattyv63. I had 2 lumps in right breast, so 6 needles in there, and one in left breast, so 3 in there. I had ice packs on afterwards and was still very sore and very bruised. Leftie was mostly ok, but rightie was still bruised up until the mastectomies a month later. Being multifocal and bilateral, google told me it was not good. It ended up being a low grade and stage 1. Before surgery, the doctor even thought it was DCIS and that I wouldn’t need radiation or chemo. So, stay off google!! You won’t know much til results come back, and you have surgery if it’s positive. The reality will never be worse than what your mind can imagine on its own. You’re in the worst part, where you’re scared and lost. From here, it gets easier. Keep doing things that bring you joy and make you happy. Don’t let this get in the way of your life.
- Julez1958MemberHi @Nattyv63, after my biopsy my boob was bruised and really tender for a few days.
You are now on the roller coaster/treadmill and things will start moving .
Feel free to post here as we have all been there one way or another.
I had every scan known to man including a petscan and each time worked myself into a nervous wreck but in the end I was stage 2 no cancer in my lymph nodes.
There WILL be light at the end of the tunnell - it may be a cliche but try to take it one day at a time.
🌺 - June1952MemberHello @Nattyv63 - pleased that is now over for you. Thank you for letting us know. I guess we all sort of concentrate on what is supposed to be happening at the time, so things feel worse than they are. Wait for your results and an action plan before panicking. Still no Googling ! 😁
Rest and be kind to yourself. Do something special as a treat just for you.
Best wishes. Come on and chat or vent if you need to. - thanks for updating us, and ok you shared the pics with us, but not sure if you are aware this is a public forum, and even those that are not members can see all that is posted, except in the private group. Just so you know. Hmmmm, it doesn't look pretty I agree, I think mine looked similar, but wait to hear what they say is going on, OK?
Take care. xx Try to relax tonight, there isn't much you can do until you get the results. You are in good hands at the Alfred :) - Nattyv63MemberHi all! Today was pretty bad either not enough local or not in the right place I could feel the biopsies being taken and the clips being put in place. I told the doctor but she said they were nearly done. EXTREMELY sore now and can barely move my left arm. Was not a pleasant experience and I fear what’s to come! I took some pics of my films - it doesn’t look pretty!
- If you get a chance pop back in and tell us what your experience was like today @Nattyv63