Newly Diagnosed - story so far
Moderator moved @hays post from activity section to main 'Discussion' section: hays Hi all. I am amazed at reading everyones journey on here thus far - the type of thing you don’t realise how com...
Forum Discussion
SO sorry to see you join our exclusive little club, @hays ... if you keep updating this thread with your ongoing treatment plans & questions .... it will become a bit of a 'diary' for your active treatment.
Great that you've had your surgery and hopefully going well - you'll be relieved that it is 'out' .... Where abouts are you, roughly? We may have members living nearby who may be able to point you to services in your area - or even meet up for a coffee & a chat! xx
Do you have a trusted friend or family member to go with you to your meetings for support & an extra set of ears? Consider recording your meetings from now on as it is easy to miss one bit, whilst thinking of what was just said! grrr
Being a nurse yourself, may be a tad challenging too, as you know a lot of medical stuff - but this is really specialised ... and even experts who are diagnosed, find it really challenging .... feel free to ring our Helpline on 1800 500 258 (Mon-Fri work hours) to have a chat xx
Have a listen to the Charlotte Tottman podcasts (she is a specialist BC psychologist who was diagnosed about 5 years ago & had a double mastectomy, remaining flat) as she only realised after her own diagnosis, that it is SO much harder than she thought. :( Her podcasts are VERY easy to listen to. (Click on the block showing LOTS of podcasts (show 22) - and start on No 13, which is the FIRST one of Series One.
https://soundcloud.com/search?q=charlotte tottman
Also check out this post ... where we cover a heap of 'off topic' subjects like our pets, our gardens, hobbies, art & craft & even some funny posts (god knows we all need a laugh now & then.). There's lots of other stuff to check out too xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
I hope you've got good support from family & friends .... Sometimes, it can be a bit confronting for them & many won't know what to say & some will say nothing (which really hurts.) Maybe set up a monthly email or blog to 'fill them in' in the one hit - so you don't have to keep repeating yourself all the time (which can just be SO upsetting.) You may even have to learn how to say 'No' now & then too ....
take care, be kind to yourself - take each day as it comes, try not to get ahead of yourself - and write down any queries that you want your team to answer at the meeting x
Great that you've had your surgery and hopefully going well - you'll be relieved that it is 'out' .... Where abouts are you, roughly? We may have members living nearby who may be able to point you to services in your area - or even meet up for a coffee & a chat! xx
Do you have a trusted friend or family member to go with you to your meetings for support & an extra set of ears? Consider recording your meetings from now on as it is easy to miss one bit, whilst thinking of what was just said! grrr
Being a nurse yourself, may be a tad challenging too, as you know a lot of medical stuff - but this is really specialised ... and even experts who are diagnosed, find it really challenging .... feel free to ring our Helpline on 1800 500 258 (Mon-Fri work hours) to have a chat xx
Have a listen to the Charlotte Tottman podcasts (she is a specialist BC psychologist who was diagnosed about 5 years ago & had a double mastectomy, remaining flat) as she only realised after her own diagnosis, that it is SO much harder than she thought. :( Her podcasts are VERY easy to listen to. (Click on the block showing LOTS of podcasts (show 22) - and start on No 13, which is the FIRST one of Series One.
https://soundcloud.com/search?q=charlotte tottman
Also check out this post ... where we cover a heap of 'off topic' subjects like our pets, our gardens, hobbies, art & craft & even some funny posts (god knows we all need a laugh now & then.). There's lots of other stuff to check out too xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
I hope you've got good support from family & friends .... Sometimes, it can be a bit confronting for them & many won't know what to say & some will say nothing (which really hurts.) Maybe set up a monthly email or blog to 'fill them in' in the one hit - so you don't have to keep repeating yourself all the time (which can just be SO upsetting.) You may even have to learn how to say 'No' now & then too ....
take care, be kind to yourself - take each day as it comes, try not to get ahead of yourself - and write down any queries that you want your team to answer at the meeting x