Hi @Tilly45 You may like to join the group for ladies living with metastatic disease. Link below.
http://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancerAlso there is a resource available called Hopes and Hurdles, if you don't have one already the link is below.
https://www.bcna.org.au/resource/kits/hope-hurdles/Good news on the trial. Have you been connected with a breast cancer nurse yet?
Ask anything..we will help with whatever we can. There are many ladies on this site living well with stage IV and they will provide you will invaluable support. Kath x