New diagnosis
hi everyone, I am new here, while I am saying I am newly diagnosed it occurred back in Sept. I felt so overwhelmed that when I looked at this site I couldn't cope, I had to shut it down. It has taken...
Forum Discussion
thanks everyone,
yeah its hard being on the other side. I am a nurse and worked full time within the community, I managed my area, I have always worked, been the backbone for my family: organised everything within our family, like all nurses a control freak on everything.
My girls are older and are getting there as they are not use to their mum in a non functioning role. I must say my hubbie has stepped up, I almost feel abit suffocated at times, he has become very protective. I know it sounds terrible but we have never had a joined at the hip relationship. I am not rushing back to work, actually I will need to find a new one eventually
I am not pushing myself to do anything, We have spoken about me having at least a yr off work so I can recover and then we plan to travel abit round the Kimberleys/Darwin for abit. But lets see what happens with my path and if he can get the time off work
my hubbie is having a big learning curve on doing everything. I am learning to turn off or more bite my tongue when things are not done my way, and not to look at my garden too much.
I feel the the side effects of chemo has got worse with each one, am having Ristempa the day following my chemo. For the last 2 doses. The bone pain has been so horrendous, I am not going to have this next time and the chemo can be altered. The bone pain has become part of my day that stops me functioning, and then we have the other side effects. The fatigue has really hit me since the first dose. Sleep is not a problem for me.
I was down to join a rehab group but ended up in hospital with febrile neutropenia, neutrophils were zero on day 8 of my 1st dose of chemo. So I must remember to asked the nurses to follow it up. I go for a walk each day when i feel up to it, to get the mail and a walk round my garden. We live on a small acreage so it is a wander around.
I live just outside of Melbourne in the hills, a little unknown town called Avonsleigh, just near Emerald, I would love to connect if anyone is close by.
yeah its hard being on the other side. I am a nurse and worked full time within the community, I managed my area, I have always worked, been the backbone for my family: organised everything within our family, like all nurses a control freak on everything.
My girls are older and are getting there as they are not use to their mum in a non functioning role. I must say my hubbie has stepped up, I almost feel abit suffocated at times, he has become very protective. I know it sounds terrible but we have never had a joined at the hip relationship. I am not rushing back to work, actually I will need to find a new one eventually
I am not pushing myself to do anything, We have spoken about me having at least a yr off work so I can recover and then we plan to travel abit round the Kimberleys/Darwin for abit. But lets see what happens with my path and if he can get the time off work
my hubbie is having a big learning curve on doing everything. I am learning to turn off or more bite my tongue when things are not done my way, and not to look at my garden too much.
I feel the the side effects of chemo has got worse with each one, am having Ristempa the day following my chemo. For the last 2 doses. The bone pain has been so horrendous, I am not going to have this next time and the chemo can be altered. The bone pain has become part of my day that stops me functioning, and then we have the other side effects. The fatigue has really hit me since the first dose. Sleep is not a problem for me.
I was down to join a rehab group but ended up in hospital with febrile neutropenia, neutrophils were zero on day 8 of my 1st dose of chemo. So I must remember to asked the nurses to follow it up. I go for a walk each day when i feel up to it, to get the mail and a walk round my garden. We live on a small acreage so it is a wander around.
I live just outside of Melbourne in the hills, a little unknown town called Avonsleigh, just near Emerald, I would love to connect if anyone is close by.