Forum Discussion
Shaylls
9 years agoMember
New Diagnosis
Hi Everyone,
Just wanted to say hello. I have been diagnosed this week with early stage breast cancer - invasive lobular carcinoma. It's been a scary week going from a slightly inverted nipple to rushed tests here and there to having cancer. Going in for surgery for removal on Monday and then will be looking at radiation and hormone therapy from there. My head is still spinning and my emotions are all over the place. At 44 with no family history this was the last thing I would have ever expected.
feeling positive but have moments of complete fear also.
Shaylee
Just wanted to say hello. I have been diagnosed this week with early stage breast cancer - invasive lobular carcinoma. It's been a scary week going from a slightly inverted nipple to rushed tests here and there to having cancer. Going in for surgery for removal on Monday and then will be looking at radiation and hormone therapy from there. My head is still spinning and my emotions are all over the place. At 44 with no family history this was the last thing I would have ever expected.
feeling positive but have moments of complete fear also.
Shaylee
30 Replies
- socodaMemberHi Toni63, What a shocker!! So are the changes in the right breast being flagged as BC? Can understand your family not coping well and as for getting so close to the 5 year clear it must be incredibly frustrating. Please know that yes you most definitely can come here and unload and get all the support we can give. Vent away, cry, scream and get it out of your system. When is your surgery?? Let us know how you're going Xx Cath
- Jess_BCNAMemberHi there @Toni63 - just wanted to welcome you also to the online network and to let you know that if you need any help working your way around the network please just let me know.
- iserbrownMemberMy heart goes out to you Toni63 and others that just seemed to get pipped at the post (almost clear) - here's hoping it is smooth sailing with treatment. Take care
- Toni63MemberHI new to this forum, was diagnosed with DCIS 2012, 3 x lumpectomies and radiotherapy and that was that.. well that is what I thought, mid Nov had what was supposed to be my final mamo and scan before being signed off as 5 years (almost clear) but my body thought otherwise.... off for a biospy DCIS again same breast, and then MRI and changes in the right... wow what a couple of weeks .. it certainly has been a whirlwind, and family not coping well... nice to know I can unload here, with those that understand... thinking of you all that are going through this journey ..
- PayneMember
Hi Shaylee,Shaylls said:Hi Everyone,
Just wanted to say hello. I have been diagnosed this week with early stage breast cancer - invasive lobular carcinoma. It's been a scary week going from a slightly inverted nipple to rushed tests here and there to having cancer. Going in for surgery for removal on Monday and then will be looking at radiation and hormone therapy from there. My head is still spinning and my emotions are all over the place. At 44 with no family history this was the last thing I would have ever expected.
feeling positive but have moments of complete fear also.
Shaylee
I was diagnosed 31st October and am now 19 days post op lumpectomy and removal of all lymph nodes in right arm. First consult with oncologist tomorrow. Still feels surreal. I have just turned 64 and am a registered nurse but still having trouble coming to terms with it all and the look of my 'new' body. - DMareeMemberHi Shaylee, I hope the op went all to plan, I hope you are feeling better today. Best Wishes Donna
- Michelle_RMemberHope you are feeling all right after your surgery today - it's all a bit vague until the anaesthetic wears off! Take advantage of the rest you will have in hospital - you will be tired when you get home.. The physio will give you an exercise sheet - do them all as it makes a huge difference later on. You have taken the biggest step already - the cancer is gone with the surgery! All the rest is clean-up! Big hug. xx Michelle
- NeMemberWelcome Shaylee and I hope you are on your way to recovery after your surgery today. Keep us posted how you are traveling. I often say this is a marathon not a sprint. One day at a time, one issue at a time. Don't try to take it all in in one day or week even. You will soon find your mojo amongst all the crazy. We are all here for you xxx
- onemargieMemberHi there shaylee, good luck with your surgery heres my story for you if it helps. I was diagnosed in may with triple neg had a L mastectomy by choice instead of lumpectomy and radiation then chemo) no lymph node involvement and scans all clear. I have finished my 8 fortnightly rounds of chemo ( 4 AC 4 taxsol) 5 weeks ago got through it fairly well, better than I thought I would the biggest thing was the fatigue for me for the first week then improved from there also had some issues with reflux which I've never had before. and some back muscle soreness post Add to dictionary injections for a day but relieved with baths and body shop bath milk... that stuff is the best!!. some mild tingling in my fingers and toes and my finger nails got a beating but improved since I put the hard core polish on them and of course the hair loss, mind you I shaved my head after my first round of chemo and was left with stubble which I still have but still no regrowth in sight yet. Ive heard it can take months. I still managed to function though with daily stuff like housework, dinner etc just got it all out the way in the mornings when I was feeling half human. I started back at work a couple weeks ago just 4 hours per week which is keeping me busy, will go back properly in the new year as per specialists I have booked to have my other boob off end of nov as a preventative although surgeon and oncologist said it wasn't necessary I was adamant I wanted if off as Ive heard of women getting it in the other side but am still thinking it through. Ive decided not to have the reconstruction as I am happy with te prosthesis and feel I have had enough surgery already!! I also qualified for the genetic test as I also have no family history and am aged under 50 but will have to wait 8 weeks for the results. This site is great for advice and support. Best of luck to you. Margie :)
- ShayllsMemberThanks everyone for all your comments. It's nice to know as horrible and scary as all this is, I'm not alone. Surgery tomorrow and then map out a full plan after all the results.
It's exactly as some of you have said, it's like I'm in a daze yet on this very fast train. I feel I just need to get off and have a moment to breathe.
Hopefully soon xxx