Forum Discussion

Ciaobella57's avatar
11 years ago

New diagnosis

Hi everyone I just wanted to say hi and introduce myself. I was diagnosed just before xmas . Everything seems Very confusing as my diagnosis keeps changing! initially I started off with DCIS ( apparently the lucky cancer or so I was told) non invasive which has now progressed to include an invasive tumour. I have just had my second wide incision on Tuesday trying to get clear margins. Also there is now talk of chemo as my cancer is hormone negative. I have to wait till the 19th for my results. I think the waiting is one of the hardest aspects- of all of this! There is so much to learn its a bit overwhelming . I hope to maintain some level of fitness throughout my treatment if for no other reason than it makes me feel happier :)

21 Replies

  • I did breat cancer last year, and now doing the waiting game again. I am still know better  at the waiting but as a control freak too ,I have learnt patience. You can message anytime and good luck. Waiting for my next MRI and results will tell me which way my next treatment plan will go. I had a very bad breast cancer.

    Cyber hug

    Sarah54 (write everything down)

  • I did breat cancer last year, and now doing the waiting game again. I am still know better  at the waiting but as a control freak too ,I have learnt patience. You can message anytime and good luck. Waiting for my next MRI and results will tell me which way my next treatment plan will go. I had a very bad breast cancer.

    Cyber hug

    Sarah54 (write everything down)

  • Karen and Polly great comments and suggestions thank you . I am so glad I found this group ! I never asked for copies of my results last week so will definitely do so on the 19th. Yes I agree we are used to bring in control. And I think it's frightening for our families too so I find I am constantly reassuring everyone . I read this and it's becoming my new mantra lol It is what it is It was what it was It will be what it will be It will take as long as it takes I did feel by being accepting of my situation I was almost complacent . However I can still be patient while still planning to kick bc butt. Thanks again for your words of encouragement . If nothing else I have met such lovely kind people since my diagnosis . Deb xx
  • Karen and Polly great comments and suggestions thank you . I am so glad I found this group ! I never asked for copies of my results last week so will definitely do so on the 19th. Yes I agree we are used to bring in control. And I think it's frightening for our families too so I find I am constantly reassuring everyone . I read this and it's becoming my new mantra lol It is what it is It was what it was It will be what it will be It will take as long as it takes I did feel by being accepting of my situation I was almost complacent . However I can still be patient while still planning to kick bc butt. Thanks again for your words of encouragement . If nothing else I have met such lovely kind people since my diagnosis . Deb xx
  • Couldn't agree more ladies. The loss of control is a real challenge. I think like most women we are used to be the ones that make everything happen when we need it at home and with our families. Everyone relies on us being in control and suddenly we find ourselves in a position where we have to rely on others and hand over control to people we barely know. It's difficult but we need to remember that we can choose to hand over control to our medical team who are experts and know what they're doing. If I start to feel like a bystander with no input, I ask more questions and make sure I'm at least in control of keeping up to date. I then get copies of all my info and results and keep them in a folder which I can then take with me to appointments if needed or just revisit if I need clarification. Good luck with your treatment. I hope you get a clearer picture of your situation and treatment soon.
  • Haha me too! A huge control freak in fact. The fact is the only thing we have control over is how we react and even then there are times that we won't have control over that either. I've often wondered if that is what I have had to learn with this experience; to let go, patience, to put me first instead of everyone else and to ask for help. This is a great site. There is always someone who understands what you're going through. Hang in there and take care. Karen xox
  • Thanks Karen . I am a bit of a control freak ( my husband would raise his eyes at the word "bit") so think I am going to have to try and let that go for a while because it feels like nothing is in my control at this stage. So glad I have connected with this site xx
  • Hi there Welcome to "the club". Sorry that you have become a member though. I had the same thing happen. It felt like every time I saw the doctor, things had changed again. I wonder if that is just the nature if the beast at first. And yes, the waiting is dreadful. It's good to plan ahead but be prepared that you will have to take things a day at a time particularly if you are having chemo. You will get lots of support and helpful tips on this site. Try to keep busy and good luck for the 19th. Hang in there. Karen xox