Forum Discussion
Newby24
7 years agoMember
New and so confused
I am Grade 2, sentinel lymph node free, deciding if the 4 or 5% difference of having Chemo or going straight into radiation and onto tablets and with the added severe family history of kidney and heart disease. So confused ‘do I do Chemo or not’ I know it’s my decision but would like to know if other women have same or similar diagnosis. The oncologist said last week you have 6% extra chance of survival and then today said 4 or 5%.
165 Replies
- Doin_itMember@Newby24 my hands peeled down the sides. Went as thick as leather for a while, but didn’t take long to heal. How are your nails going? Best wishes for your last chemo. Same as @jennyss, took around 3 weeks for my energy to come back. Then I had 30 rounds of rads, but didn’t get fatigue luckily xx
- jennyssMemberDear @Newby24 , Best wishes for your last chemo. I found my energy started to come back 3 weeks after my last chemo.
- Newby24Member@jennyss thank you I have shown the doctor and he said he doesn’t think it hand and foot because I don’t have anything on my feet. @kezmusc yes my hands blistered and peeled and flaked everywhere on my hands, wrists and just started on my elbow. I have tried lots of cream and I think emu oil and goats cream have been the best. They are nearly healed now. The oncologist asked me to decide whether to do chemo 4 at a 25% less or to not do it at all. He also put the chemo back 1 week to let me heal. So my hands have nearly healed and I had a couple of ultrasounds this week to make sure I wasn’t clotting and I got the all clear. The problem is now I am so drained of energy and even walking to the toilet is a chore. What I’m wanting to know is how long before I get some energy back? I am scared with having my last chemo this Wednesday that my energy can’t get any lower.
- kezmuscMemberHey @Newby24,
I had a severe skin reaction to taxol. Yes, it looked like red burning and itchy then it dried right out and went flaky and horrible.
Try the moo goo, try some sudocream (that's really hard to get off though) but will take the burn and itch out of it.
Possibly some dermaid from the chemist as that has a bit of cortizone int it. You can get it in a cream or an ointment, I found the ointment more soothing, the cream tended to sting a bit,
I ended up having to stay on prednisone through the lot of it. It was on the back of my hands, forearms, elbows and knees. - jennyssMemberDear @Newby24,
During and after my third and fourth AC chemo sessions I developed Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia. I had red skin and blisters on hand and feet. Ice packs and sorbolene cream helped. It was completely gone two weeks after chemo ended.
Here is a link with more info, but ask your nurse/medico.
https://www.cancer.net/coping-with-cancer/physical-emotional-and-social-effects-cancer/managing-physical-side-effects/hand-foot-syndrome-or-palmar-plantar-erythrodysesthesia
Best wishes from jennyss in Western NSW - AfraserMemberBest to get someone like an oncology nurse to have a look, then you have a better idea of how to treat it.
- kmakmMemberI had a lot of problems with my hands, but the palms and fingers, not the back. I ended up wearing white cotton gloves to try to ease the pain on contact with anything. What about something like Soov that has an anaesthetic component?
- FlaneuseMemberMaybe the gel from inside Aloe Vera plant leaves (I used that a few times during rads) or Aloe Vera juice of the juice you can buy from chemist.
- ZoffielMemberWhen you say the backs of you hands, do you mean the skin or is it possible you have phlebitis which is inflammation of the veins which can be caused by the chemo drugs? That's really painful, nothing much seems to soothe it either. I've always found the oncology nurses to be better at recognising these things than the doctors, have you asked yours to have a look?
- Newby24Member@Sister thanks and I think Moogoo is probably the only thing I haven’t tried but will definitely grab some in the am. They started being really dry and oncologist said I was washing my hands too much. Being over cautious and they gave me Hydroxyl ointment but it then dried out my hands and they started to peel so I stopped using that and now I am just using Sorbolene. Just searched a few forums but most say gets better after chemo arrgh