Forum Discussion
Newby24
7 years agoMember
New and so confused
I am Grade 2, sentinel lymph node free, deciding if the 4 or 5% difference of having Chemo or going straight into radiation and onto tablets and with the added severe family history of kidney and heart disease. So confused βdo I do Chemo or notβ I know itβs my decision but would like to know if other women have same or similar diagnosis. The oncologist said last week you have 6% extra chance of survival and then today said 4 or 5%.
165 Replies
- kmakmMember@Sister Yes! I'm constantly looking for different ways to phrase it. It can sound very dodgy to those who don't understand the nature of this place!
- SisterMemberMy medical team must be sick of hearing me say, "well, I've heard on the network..."
- Newby24MemberYes strange or strangers I think that is my comfort right now ππΌ how you can connect with strangers lol I said something today about looking after my toenails and my daughters said how do you know that? I said my friends online ππΌ
- AllyJayMember@Zoffiel...Jim Morrison (The Doors)...People are Strange....."...
- ZoffielMemberYou will find @newby24 that we start out being strangers and end up, occasionally, just being strange. Some of us have been able to meet in real life because of geographical closeness or because we've been able to attend conferences or events together. There is no doubt it's the club no one wants to join, but the company is first class. Mxx
- Newby24Member@Sister Thank you for your advice and I have already started to file all paperwork so it is together and I will try to start writing everything down or just record it somehow ππΌ @arpie yes my two girls n grannies are my life and from first minute have been strong for me π @kmakm Thank you and yes everyone on here is fantastic and really are supportive. Even though we are all strangers, I feel like we are so close because of the circumstances we have been thrown into π₯
- kmakmMemberGood on you! Well done. It's a difficult time but it sounds like you're well supported. The folk above have given you some excellent advice. You've got this, and we've got you. Big hug, K xox
- arpieMemberYour kids sound fantastic, @Newby24 - and great that you a re moving in with one daughter & the other just down the road. They will be terrific support for you. Terrific idea to cut the hair. Maybe even take 'before' and 'after' pics - sometimes the hair can come back as 'curly' after chemo.
All the best as you start your treatment ..... throw any questions that you may have & the girls will have an answer for you xxx Take care xxx - SisterMember@newby24 If you search the discussions, you will find out a lot about chemo and other treatments. Just try not to get too anxious before you know how you're going to react. It's not a fun time but for most of us it's doable. I found it helpful to keep a notebook on the bench to record how I was feeling + temps and meds that I'd taken (I would have forgotten, otherwise). That will help you to get a handle on how the chemo affects you over the course of the weeks and is very useful when you see the onc. The other thing is, don't suffer in silence! If the meds they send you home with don't cut the mustard, ring the clinic (even on the weekend) and tell them. I made the mistake on my first time of thinking that I couldn't do much about the nausea on the weekend and suffered until the Monday when I didn't need to. And the new medication sorted me out straight away.
The other thing I found really useful was to get a zip-up folder from Officeworks (I started with an ordinary sized folder but ended up having to upgrade to a lever arch), a couple of packets of plastic sleeves and some dividers. I filed all of my paperwork in this so everything was in one place and easily portable. Because the folder zipped up, I didn't need to worry about things falling out and I could also slip in the odd thing (like cold cap headband). - Newby24MemberThanks Ally ππΌ