Forum Discussion
Newby24
7 years agoMember
New and so confused
I am Grade 2, sentinel lymph node free, deciding if the 4 or 5% difference of having Chemo or going straight into radiation and onto tablets and with the added severe family history of kidney and heart disease. So confused ‘do I do Chemo or not’ I know it’s my decision but would like to know if other women have same or similar diagnosis. The oncologist said last week you have 6% extra chance of survival and then today said 4 or 5%.
165 Replies
- kitkatbMemberYes it is a really weird feeling with the hair. Having the shakes is totally normal @Newby24 I ate little on the worst days but loved pineapple, watermelon and red pawpaw made up for it though on the week before chemo.
- kmakmMemberYes, sore and itchy is the precursor. It can go on for some time though, before it actually falls out.
- Newby24Member@Zoffiel I think I have had every hangover possible and your quite right. Sometimes it feels like an outer body experience. Everything tastes yuck n cramps are ridiculous. But I suppose it is bearable. Panadol Advance and gastroStop have been the drugs of choice for today. I think the hair must be getting ready to fall out as my scalp is really sore and itchy. Slept nearly all day. Thanks @Zoffiel
- ZoffielMember@newby when I first had chemo in 2006, I used to joke that 20 years of hangovers was perfect training. Fast forward ten years to chemo V2, it was more like having alcohol poisoning. Horrible. Shaky is a great way of describing it that disconnected feeling. Poorly but not ruined. No-one wants to do this and it's like going out on the town with a couple of friends--you can all consume exactly he same things and have vastly different morning afters. MXX
- Newby24MemberMy bestie said how does it feel and I said I can’t really explain, I just feel sore and shaky but not in like when your hands shake more inside. Kinda like a nervousness shaky feeling. Lucky days seem to be going quickly so far well at least the last 4 days.
- kmakmMember@Newby24 Shaky is a good word for it; that's exactly how I felt.
- Newby24Member@kezmusc yes I was watching those toilets at oncology the other day and people were coming and going for the hours I was there and I was thinking how do I keep clean if I go in there? Having some cramps issues today and headache. Panadol is fixing it so far. Soreness is not really in one spot though it seems everywhere. I just keep getting up in putting washing on or folding so I don’t get stiff. But it is such a funny feeling, kinda shaky at some stages. Trying to eat is getting a problem cause everything is tasting a bit yucky. I am doing the Biotene toothpaste and mouth wash and salty warm wash so trying to keep ulcers at bay. Day 4.
- kezmuscMemberUgghhh, I forgot how annoying condoms were. It had been a really long time since those days LOL.
It's interesting regarding the loos etc. The room directly in front of my desk at work is where all the really sick, tracheostomy and occasionally cytotoxic patients go so that someone always has eyes on them at all times.
I remember one day watching the nurse gown up etc to go in to check on a cyto patient and here I am sitting at my desk all cytotoxic and stuff and no one worrying about that. - Newby24MemberAll good it’s just that we have two toilets but one is an ensuite in my daughters room n we have a 10 year old n two 16 year olds who I usually share with so I am already used to cleaning every day misses. But they are not sharing my toilet any more only me so far but not sure for how long. But enjoying the cleanliness so far lol ready for bed and just took 2 panadol for leg cramps again, hope I go alright tonight. Day 3 done.
- kmakmMemberI can assure you @Shellshocked2018_ that I certainly didn't have the energy, or desire... Furthest thing from my mind at the time! I'm sure others are different though. :)