My story

I have BAD BAD fatigue this time (I know Taxotere can do it, and did it with the first cycle, but this is WORSE, I think  it may be becasue I had a low hemoglobin before beginning this cycle, so m probably anaemic to boot).

My hubby is AMAZING, he does everything - drives me where i want to go, buys me any treats or food I want (at anytime of day or night), does the house work etc and makes me eat and rest (not that resting is a big problem at present, the farthest Ihave been from my bed since getting home from chemo is the toilet :-), but that too will pass.

Tony is right, we all go through the grouchy, bitchy stuff, when we are angy or snappy (and don't know why even). Tony sounds like a great support and help.

Congrats on getting this part of your journey over and done with.

I am glad that everything has gone well so far, Good Luck for your results on Tuesday (Not that you will need it I am sure).

It is VERY VERY normal to have a woe is me day (or a few of them) after surgery and while waiting for results (You have beenoperated on so remember to take it easy, rest, relax and if you want to indulge a little (have that cheeky takeaway for dinner, that you wouldn't normally because you are watching your weight or what ever, have some choclatge when/ if you feel like it, Ask your family/ friends to get your dinner, make yuo a cup of tea, get you a  glass of wine (if allowed with your meds etc).

I'm glad thast your surgery went well and that you are home and over this surgery part of your journey.

Hi Everyone

Well back home now - surprising with very little discomfort - they did remove the lump and 2 nodes so will find out next Tuesday if they successfully removed all the BC if not I will be back in again but first things first - find out what type it was & if they removed it all and then find out where we go from here.  I have been told already that I will have the standard 6 wks of radiotherapy but what else it yet to be determined.

Thank you so much everyone for all of your thoughts - today is a bit of a 'woe is me day' but I have been told that this is all very normal - I don't like not being in control so it is driving me crazy.

Take care

Narelle

Hi Narelle

I hope all went well on Monday. Was thinking about u. You don't sound like a dragon.... it's just hard some times. So here we all are.... we can be your punching bag. We all are going to have "our moments", but remember we can talk to each other, without the worry of offending anyone.

As they say " the quicker the better". So like me I just want the whole thing over, so I can have that "normal" life back.

Take care and thinking about you, and hope all goes really well.

Big hugs

JulieXX

Tony (my husband) and I have just come back from a road trip - our son lives south of Geelong and we visited your fair city - it seems to be well planned not at all what we expected quite pretty anf everyone seemed really friendly.

We had a great time on our trip we drove a motorhome and did about 5000klms having to zigzag across NSW due to floods etc but really enjoyed it after the first 2 days - seemed really silly after being married for so long - we had to sort each other out - I guess being with each other 24/7 was the test I am so lucky that we have just done that so I'm feeling quite relaxed after our trip.  I don't think Australians realise just what a beautiful country we have, next year we are going to Mt Isa as Tony has a brother up there but I guess first things first.

I won't write again for a few days so talk next weekend.

Take care and continue to be positive.

Narelle

Tony (my husband) and I have just come back from a road trip - our son lives south of Geelong and we visited your fair city - it seems to be well planned not at all what we expected quite pretty anf everyone seemed really friendly.

We had a great time on our trip we drove a motorhome and did about 5000klms having to zigzag across NSW due to floods etc but really enjoyed it after the first 2 days - seemed really silly after being married for so long - we had to sort each other out - I guess being with each other 24/7 was the test I am so lucky that we have just done that so I'm feeling quite relaxed after our trip.  I don't think Australians realise just what a beautiful country we have, next year we are going to Mt Isa as Tony has a brother up there but I guess first things first.

I won't write again for a few days so talk next weekend.

Take care and continue to be positive.

Narelle

Tony (my husband) and I have just come back from a road trip - our son lives south of Geelong and we visited your fair city - it seems to be well planned not at all what we expected quite pretty anf everyone seemed really friendly.

We had a great time on our trip we drove a motorhome and did about 5000klms having to zigzag across NSW due to floods etc but really enjoyed it after the first 2 days - seemed really silly after being married for so long - we had to sort each other out - I guess being with each other 24/7 was the test I am so lucky that we have just done that so I'm feeling quite relaxed after our trip.  I don't think Australians realise just what a beautiful country we have, next year we are going to Mt Isa as Tony has a brother up there but I guess first things first.

I won't write again for a few days so talk next weekend.

Take care and continue to be positive.

Narelle

I am in Canberra.

I am lucky, my hubby has taken on all the cooking & cleaning etc.

I am the same, my brother who has never been to my place (they live in Vic - & I have lived here 15 yrs), decided he had to come see me when I told him of my diagnosis, I toldhim this was not the right time, because of chemo etc,I wouldn't be able to show them around or spend much time with them, & instead they should visit after I finish treatment.

Like yo I must have been on a chinaman massachre in a past life (I got Breast cancer (my Mum & did's sister both had it), a genetic connective tissue condition from my Mum, arthritis (from my Mum) & more).

You sound so much like me - I tend to ramble on though.

Just been speaking to my sister as she lives about 5 hours away she feels that she should be here - er why - I tell her that I'm the lucky one in the family - I got our fathers heart condition and now BC - also have just been diagnosed with Thyroid problems - just how many chinaman did I kill in past lives (lol)

We live in Qld - where r u?

Gosh those pesky people have been in my house again and made a mess in the kitchen - left dishes everywhere and pots & pans for miles - guess I had go and clean up.

Enjoy the rest of the weekend.

Narelle

 

Yeah,

I have already had people trying to tell me of miracle sures, if I eat this or eliminate that etc then my cancer will go away and I wont  need chemotherapy or anything (just take this ginger powder) - what a load of C#%*.

I ignore people who tll me this (I have had it in the past with the genetic condition I have and a neurological condition I have, people who tell me I can cure myslef by eating only this, or that, eliminating this or that or doing this or that exercise - I laughed at the ones who told me it would cure my genetic condition, like a food, exercise or elimination can re-write my entire genetic code <LOL>).

My recommendation is to IGNORE stupid people, and if they try to tell you of miracle cures, just tell them to stop (You can go one step further like a friend of mine, she says - look I will stop you there and ask you to call, email or fax my Doctor/ specialist - Dr........ and tell them because I am SURE they would LOVE to know how to cure all of there paitents. <LOL).

As to people who are insensitive or who accidentally say the wrong thing without knowing. Ignore them, if yo wish you can explain why you reacted the way you did or you can just walk away.

Of COURSE you got upset, you are a human being, if someone said that to me I think I would probably tear up too. She probably realised or at least thought you had some kind of cancer experience (ie. cancer patient, lost someone to cancer etc). Don't worry about it or feel stupid, it is a 100% natural response.

I am waiting to see what I do when I get my first comments about my shorter than short hair cut or my little bald head when my hair loss finishes. I REFUSE to feel that I have to wear a wig or cover up to make OTHER people comfortable, I have been shopping, to the hospital and to the local mall,with no hat on since my hubby gave me my crew cut (it is 8mm long but looks shorter,becasue my hair if VERY fine and it lies down instead of standing up). ihave had a few looks, and double takes and like, but I fel that THEY are the ones with the problem NOT me.

My treatment is going well (2nd cycle of Chemo on Monday (so I will be thinking of you , while I am having my chemo, hoping your surgery is going well), I have no obvious signs of the cnacer having spread ut 1 of my sentinel nodes was positive (5mm deposite) , and I was LVI positive as well.

Where abouts in OZ are you? (If you don't mind answering).

(OH WOW, My posts tend to be very long - SORRY!)