Forum Discussion
Lymphoedema and recurrence fears
Hello everyone. It has been ages since I have posted. Since this site was re done I no longer got notifications, then 2 major surgeries in 2016 and life kind of took over.
I was diagnosed with Lymphoedema about 8 weeks ago. Everthing was going along swimmingly. I had lymphoedema but only to a fairly minor degree then one morning about 8 weeks ago woke with a swollen hand and arm. Such a shock. So have had the intensive therapy with the bandages and now have a compression sleeve which just keeps the lymphedema controlled to a point. My struggle is that I was just being able to move on after treatment and surgeries, then this. The constant reminder every day is there now and am really struggling. Is there anyone else in a similar situation?
I was diagnosed with Lymphoedema about 8 weeks ago. Everthing was going along swimmingly. I had lymphoedema but only to a fairly minor degree then one morning about 8 weeks ago woke with a swollen hand and arm. Such a shock. So have had the intensive therapy with the bandages and now have a compression sleeve which just keeps the lymphedema controlled to a point. My struggle is that I was just being able to move on after treatment and surgeries, then this. The constant reminder every day is there now and am really struggling. Is there anyone else in a similar situation?
64 Replies
- There are also different compressions available in the lymphedivas range. I have also found swimming or even walking and moving my arms in the water help a lot.
- :) Exercise in water also helps as there is a natural compression of water on the skin that combined with exercise helps with pushing the lymph fluid up out of the arm. Problem is getting firm compression garment back on if the skin is damp.
Elevating the arm whenever at rest - the higher the better helps with drainage too. - Oh, I just read your physio measured you, that's awesome. They have fantastic designs :)
Paula :) - primek said:I've got a sleeve through lymphedivas. It it very light. Easy to put on and has the separate hand piece. I am lucky enough not to need it daily at this time. Just thought I would share.
https://www.lymphedivas.com/en/shop
They look awesome, just worry because I need custom made garments that if I get the measures wrong they may not suit.
Paula x - Hi lovelies, There is research being done - don't give up hope!! http://www.upi.com/Health_News/2016/06/23/Method-to-reroute-lymphatic-system-may-help-lymphedema-treatment/8841466684985/
- Wouldn't it be good if that special night glove had inserts for cooler packs
- Great conversation that is of benefit to all of us
- I like the Lymphediva products and am hoping it might be an option for me once things are back under control. :)
Just wondering if anyone has had experience with the Caresia Night sleeve (which looks a bit like a huge oven glove / sleeping bag for your arm with special inserts that provide pressure to stimulate fluid)? As my skin didn't react well to the previous bandaging I'm currently trialling this product with my physio to help reduce the swelling. It is pretty comfy to wear at night (though still quite hot), but seems to be helping - but early days yet. Am keeping my fingers crossed (when they're not too swollen ;) ) that this will help get the measurements right down. Am eternally grateful to my physio that she is determined to find what will work best for me and seek out different solutions.
Like @mum2jj I'm pleased that there is a conversation happening about this issue as it is something those of us unlucky to develop it unfortunately need to manage constantly and there seems to be little understanding of the condition, even in some medical quarters. - My lymphodema physio measured me up and referred me to them.
