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humblevoice's avatar
10 years ago

Lupus, CPTSD, Breast Cancer... Oh My!

Hi everyone thanks for having me here in the group. i have systemic lupus and have been living with it since i was 17 years old. i'm 35 now. I found out last week i have breast cancer from the doctor on the phone because he wasn't in... then i found out from another doctor that i have a "standard garden variety" breast cancer, then i found out that the fine needle aspirant result was compromised because the collectors of the sample damaged it with formalin. and i found out that i actually have triple negative grade 3 breast cancer... so it's been a bit of a rough week... i also got a msg from a girl from uni that i thought was my new best friend saying: "sending you love and light and postitive energy huni! who do i talk to at your placement you're not longer doing so I can do it instead?" then a friend i have been close to since grade 9 so 20 years say: "its facinating isn't it? i mean from a scientific perspective!" about my new diagnosis... 

anyway. i love dancing and singing and recently picked up the ukulele and guitar and i have 2 pet bunnies. i had a another bunny who is still my son in my heart... he died from a rare cancer and i couldnt save him. i'm still in grief of him since he left for the rainbow bridge 2 years ago. now it's my turn. 

i also adore weight training. i started powerlifting mid 2015 and was getting to the point where i could deadlift my own bodyweight (80kgs), and squat 60kgs and bench 35kgs... but now i will have to start again. I also love swimming and horse riding and badmington but don't do those enough...

have a very supportive and loving partner and his mum and my mum. but i havent told my mum yet as i dont want to upset her because she had breast cancer and although have been in remission for 18 years or so has been living in fear... my plan is slowly let her get used to the idea i may have it then to tell her after my surgery when i find out if the cancer has spread. then at least she won't need to wait for results and get stuffed around like i did.

i find out tuesday 1st march if it's spread to the lymphs or bones from all the tests last week and i suppose just go from there. 

thanks for reading and i wish everyone healing energy and a big ol hug :)

liz

33 Replies

  • Hi Liz,

    I am so sorry you were put through all that stress with your diagnosis.   To tell you over the phone that you have bc is brutal - it is hard enough with a caring GP who is present.

    There is a great Triple Negative Group on the site, and we all understand what you are going through at the moment.  We are nearly all Grade 3 when we are diagnosed because it is aggressive.  You will find out your Stage (1, 2A, 2B, 3..) when your final pathology results come through.  Be sure to order your My Journey kit from BCNA - it is invaluable.  Also keep a diary from now - you will need it for appointments, questions to ask, info given, etc.

    Being so fit is a huge plus.  It really helps your reactions and recovery.  I had it all - 2 x surgeries, chemo and radiation - 4 years ago and my fitness really helped me to get my life back on track afterwards.  There is light at the end of the tunnel - just take things one day at a time, and don't look too far ahead or it can be overwhelming.

    Friends can behave very strangely.  We have all been surprised at some of the reactions we get.  Your true friends will be there for you.

    I am so sorry your mother has been through bc as well.  Nowadays treatment is so much more advanced.  Keep in touch when you get your results.  We are here for you.  Big hug.  xx  Michelle

  • hi rowdy thank you so much. yes the wait had driven me into a very dark place last week... this week i am not going to let it win. thanks for commenting xoxo

  • Hi and welcome to the site.The waiting is sometimes the worst as your imagination can get the better of you. Hoping good results for you on Tuesday xx