Lost
So far pathology etc result of grade 3 invasive carcinoma NST .ER- PR- HER2 pending. Got results via zoom at my request because I was on the road.Off to GP today for referrals then into BSQ tomorrow f...
Forum Discussion
Lol @arpie , at the time the name was because its the 2nd time the big C has played a part in my life. In Nov 2023 I was diagnosed with Atypical polyploid adenomyoma which appeared to be morphing into endometrioid endometrial carcinoma and as such resulted in a total hysterectomy in jan 2024. So yeh number 2 is about the big C’s second crack at me. Lol yes crack. And now here we are with the doodoo number 2 being a problem.
I have spoken to my gp who advised to just take the gastrostop as needed as it’s all part of the side effects. Well thats all well and good but there has to be a length of time that it becomes a “get it checked” situation. If I can be frank, to me its not what I would have called diarrhoea because its not watery but a call to local oncology ward the other day informed me that “ chocolate mousse poo that burns like chilli” as I described it , is in fact the chemo diarrhoea. But seriously how are you supposed to get through the day when you are running to the loo and popping pills……not game enough to leave the house? I am concerned as I am meant to have my portacath inserted on wednesday and I don’t see how I can in the present state. I’m keeping up with the fluids no probs to that area. I don’t want to take up space and drs time at ED if its just a case of getting samples and bloods etc then surely I can do that via gp? Is it possible to just call the ED and ask them? I notice that there is a lot of reference on bcna to people talking to their “medical team” for advice. Who exactly are they referring to? I hope you don’t say my breast care nurse because well as nice as she is well shes a casper. I was told by the nurse at breast screen that I would be allocated a breast care nurse who would support me through my journey, who would attend all my appointments with me and spend time with me afterwards to make sure that I understand what had been discussed. Hmm well she was present at meetings but took off quick sticks afterwards. I was trying to contact her but she went away and didn’t tell me. I have the office number to call her during office hours or an email, so if anything is out of business hours then too bad. She then informed me she would not be here for my first round of treatment but another bcn would be there……..nope noone came.
I have spoken to my gp who advised to just take the gastrostop as needed as it’s all part of the side effects. Well thats all well and good but there has to be a length of time that it becomes a “get it checked” situation. If I can be frank, to me its not what I would have called diarrhoea because its not watery but a call to local oncology ward the other day informed me that “ chocolate mousse poo that burns like chilli” as I described it , is in fact the chemo diarrhoea. But seriously how are you supposed to get through the day when you are running to the loo and popping pills……not game enough to leave the house? I am concerned as I am meant to have my portacath inserted on wednesday and I don’t see how I can in the present state. I’m keeping up with the fluids no probs to that area. I don’t want to take up space and drs time at ED if its just a case of getting samples and bloods etc then surely I can do that via gp? Is it possible to just call the ED and ask them? I notice that there is a lot of reference on bcna to people talking to their “medical team” for advice. Who exactly are they referring to? I hope you don’t say my breast care nurse because well as nice as she is well shes a casper. I was told by the nurse at breast screen that I would be allocated a breast care nurse who would support me through my journey, who would attend all my appointments with me and spend time with me afterwards to make sure that I understand what had been discussed. Hmm well she was present at meetings but took off quick sticks afterwards. I was trying to contact her but she went away and didn’t tell me. I have the office number to call her during office hours or an email, so if anything is out of business hours then too bad. She then informed me she would not be here for my first round of treatment but another bcn would be there……..nope noone came.