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- MazbethMemberThat’s great! If I can help you out with anything let me know. I had my treatment at the Mater Redlands, but my surgery was at the Mater at South Brisbane. Although it may feel like everything is swirling, it will settle down. There are lots of different support services available, but I found the BCNA site was the best for me. I found that having someone with me at each appointment really helped as I missed information. To be honest I had no idea about so much, but I settled into everything and gradually got a handle on things. 🙂
- BrownowlMemberThank you. It’s just nice to know that I’m not alone. I’m in Brisbane as well.
- MazbethMemberHi @Brownowl I just wanted to let you know I am thinking of you and want to reassure you that you are not alone. Both you and @CarrieP are in one of the most challenging phases where the ‘waiting’ seems to take so long.
It is actually one year ago this week that I was diagnosed. I am going to tag a couple of girls who were so lovely to me when I really struggled to see the path forward. They were either at the other end of the keyboard replying to me or I was reading their replies to others and it helped me so much. @Afraser, @kezmusc, @arpie has already given some great links and @Zoffiel - to name just a few - all so willing to share. @Afraser replied to my very first post and reassured me that things would get better; I would get a plan and I would then have a path to follow - all of it was true. This will happen for you too. The tests you are having are going to ensure that you have the best treatment suited to you. Keeping busy while you wait is going to help. Try to focus just on the now, don’t get ahead of yourself - easier said than done, I know.
If I can help in any way or answer questions, just let me know. As @AllyJay says, there are lots of different treatments and once you know what you will be having, we can offer you even more information. Take care, and sending you hugs. Mx 🌸 - BrownowlMemberThanks for your kind thoughts. I read your story and it really resonated with me. I’m just taking it day by day at the moment and trying to make the most of school holidays while I can. Good luck for Wednesday.
- CarriePMemberHi Brownowl, so sorry to hear this - i have been recently diagnosed and having my CT and bone scan this Wednesday and 1st oncology appt aswell on Wed, i too am very scared it has spread but trying to stay positive which is a hard thing to do.
i have 2 girls (10+11) so all i can think about is them.
i don't really have much advice as still on the early side of things and really not sure what to expect, just wanted to post saying i am thinking of you xx - BrownowlMemberHey. I’ve just been diagnosed by my doctor. They think It has spread to my back as well. Not sure what to think right now. I have a 7 year old which is making things difficult emotionally for me right now. I think the advice given here is great. Just looking for some support from people who have been there to make me feel at ease. 😊