Just diagnosed, your story really resonated with me...
This discussion was created from comments split from: first appt.
Forum Discussion
Hi @Brownowl I just wanted to let you know I am thinking of you and want to reassure you that you are not alone. Both you and @CarrieP are in one of the most challenging phases where the ‘waiting’ seems to take so long.
It is actually one year ago this week that I was diagnosed. I am going to tag a couple of girls who were so lovely to me when I really struggled to see the path forward. They were either at the other end of the keyboard replying to me or I was reading their replies to others and it helped me so much. @Afraser, @kezmusc, @arpie has already given some great links and @Zoffiel - to name just a few - all so willing to share. @Afraser replied to my very first post and reassured me that things would get better; I would get a plan and I would then have a path to follow - all of it was true. This will happen for you too. The tests you are having are going to ensure that you have the best treatment suited to you. Keeping busy while you wait is going to help. Try to focus just on the now, don’t get ahead of yourself - easier said than done, I know.
If I can help in any way or answer questions, just let me know. As @AllyJay says, there are lots of different treatments and once you know what you will be having, we can offer you even more information. Take care, and sending you hugs. Mx 🌸
It is actually one year ago this week that I was diagnosed. I am going to tag a couple of girls who were so lovely to me when I really struggled to see the path forward. They were either at the other end of the keyboard replying to me or I was reading their replies to others and it helped me so much. @Afraser, @kezmusc, @arpie has already given some great links and @Zoffiel - to name just a few - all so willing to share. @Afraser replied to my very first post and reassured me that things would get better; I would get a plan and I would then have a path to follow - all of it was true. This will happen for you too. The tests you are having are going to ensure that you have the best treatment suited to you. Keeping busy while you wait is going to help. Try to focus just on the now, don’t get ahead of yourself - easier said than done, I know.
If I can help in any way or answer questions, just let me know. As @AllyJay says, there are lots of different treatments and once you know what you will be having, we can offer you even more information. Take care, and sending you hugs. Mx 🌸