I received by biopsy results on Christmas Eve, stage 2 invasive ductal carcinoma. GREAT!I was given a referral which was marked urgent and sent to the surgeon and told to call them on 28th December. That was a wonderful Christmas period, NOT. But once I thought I could get the ball rolling I felt a bit better. I rang to find they are closed until 9th January, and so is the other surgeon I am referred to. I cannot find anyone open, the GP is sweet but not helpful and I am going quietly mad.The receptionists say that is a problem at this time of the year, which is not helpful and I feel like screaming at them. This is cancer here, it doesn't pause for the Christmas period.Another 10 days waiting to even get to find someone let alone get an appointment.Keeping busy helps for a while but I just hope to heaven it is not progressing while I wait, it has already been over 3 weeks of tests and scans since I found it.I am so glad to have just found this site.

Hi Unicornkisses!!!! So sorry to hear you have found yourself here!! I totally hear you, timing is everything isn't it? Now you say you are Stage 2 IDC, this is just from the Biopsy. The hardest part is the waiting absolutely, but take a deep breath and know this for certain, the time between now and then is going to be OK! The Surgeon will most likely order a Lumpectomy based purely on those results, and until you get those results you won't have a definitive pathology. The biopsy is only a guide, so you will get a much better picture once that has happened. I know its incredibly hard with the urgency of it, but it really will be ok. Ive had BC twice in 5yrs, 2 major lumpectomies, radiation, tamoxifen, chemo and now Arimidex. If there is anything I can help with or answer, ask away!!! Hugs Melinda xo

Hi Unicornkisses. Sorry you had to join us here on this network but I am glad you did. The ladies here were such a comfort when I was first diagnosed at the end of last year. I was beside myself with worry because like you the christmas holidays interfered with the commencement of my treatment. I didn't have surgery until 5 weeks after diagnosis. Chemo started 10 weeks after diagnosis. The waiting is the worse!!! Take a deep breath. I know it won't take the anxiety away but trust me, a few deep breaths certainly help. Unfortunately it is out of your hands at the moment. It won't progress that much in 2 weeks. I know it doesn't feel like that, but I was told it won't make a difference with that little extra you have to wait. Once the ball starts rolling however it will be a whirlwind of appointments. For now, as you wait, take time to take stock. Do something nice for yourself even though I am guessing you'll be consumed with worry. It will help you later on. This is just something you cannot change at the moment, so take charge of what you can control. Go out. Do something nice. And come on here and rant all you want. We are here with you every step of the way. I pray that you get an appointment as early as possibleKeeping you in my thoughtsNadine

I have to agree with Nadine here! she is absolutely right, in 2 weeks it really wont change at all, so step at a time, we certainly are all here to help! Melinda

Thank you, ladies for your input. I will be leaning on you for a while, I think. My husband is great but overwhelmed too. I will take your advice and take the time to prepare for when the appointments start. I did not realise that the first biopsy was only an indicator. I am not sure that is reassuring. I have been told for so many years that I was low risk, no family history etc that it has come as a big shock. When I can concentrate for a few minutes I will read through some of the other posts related to mine and take in what is said. I am sorry too that you both have been through it before and hope you feel it helps to pass on your knowledge.

Ask away there is an enormous amount of wonderful ladies here sharing their experiences and encouragement xo I only had my Mum who had Breast Cancer, no other family history at all and I didnt meet any other criteria of being higher risk at all for it. Luckily Id been getting Mammos at my Mums insistence in my mid 30's my first diagnosis was in my early 40's, then at the 4yr mark last year. Its a terrible thing, and doesn't discriminate and strangely stats say only 5-10% is inherited. You're going to be OK! xx

Just diagnosed but cannot even contact a surgeon until 9th January. Stress levels high.

83 Replies

socoda
Member
9 years ago
Awwwww bloody hell!!!! So sorry to hear of your news. It must all seem like a total nightmare. :'( Thank god you were diagnosed when you were and are able to be treated!!! And 1 node out of two is better than 2 out of 2!!! Your not allowed to write this year off because this is the year you become CANCER FREE!!! It's just going to take a bit more work to get there. What day next week is your body scan?
melclarity
Member
9 years ago
Ohhhh this makes me so angry, i too experienced something similar in that biopsy results are useless. Lumpectomy is the only way to get the proper diagnosis. I am so sorry to hear of your news!! I am however so glad you have your results and they can get onto it asap!! And start treatment. Its a lot to take in so take a deep breath. You are hormone receptor positive so it does mean hormone treatment. Im on Arimidex as i had a recurrence at 4yrs on tamoxifen. Hang tight! Im feeling ya!! Its shit!!! Keep talking and we'll all help anyway we can. Sending a huge hug! Melinda xo
Unicornkisses
Member
9 years ago
&@?!#*%€¥£!!!!!.
surgeons visit tonight.
wounds healing well. New boobs look good but very bruised.
Pathology report!!!!!
surgeon said it took her completely by surprise.
1.9mm 11oclock major lump extends over a 90mm area with satellite cancer cells all through the sample.
5mm supposedly benign 7 o'clock lump taken out as a precaution, IDC with entire sample full of satellite cancer cells.
another DCIS 10mm from large cancer
2 lymph glands removed, 1 has 3mm metastasis.

need to start Chemo ASAP, then mastectomy then radiation.
all are Estrogen 3+ and Progesterone 3+
HER2 negative

I understand the cancer results I think but not the hormone numbers.
but I guess that means hormone therapy as well?

so much for early stage best case senario.

I guess I write this year off then!

full body scan planned for next week.

shit, shit , shit!!!!!!!!!
melclarity
Member
9 years ago
So glad it is done and you are recovering now! Let us know when you get your results! nurture you til then! Hugs Melinda xo
Hopes_and_Dream
Member
9 years ago
Wonderful that you are now home - hope you are not in too much pain and have an easy recovery. Fingers crossed for positive news on Wednesday, It will be good to have a treatment plan. Look after yourself, Jane x
socoda
Member
9 years ago
Excellent. Rest, relax, recuperate. Xx
primek
Member
9 years ago
So glad that bit is over for you. Soon you will have a plan and that feels so much better. Take care. Kath x
Unicornkisses
Member
9 years ago
Surgery done and dusted. Now home and dealing with the pain and swelling, but it is not too bad. I should have the pathology results on Wednesday at my follow up appointment.
There was a lot more than just the surgery to go through on the day, which I hadn't really expected, including the hook wire and all the photographs and CT scans. Probably a good thing I didn't know, as I am very claustrophobic and would have stressed even more. Fortunately they allowed my husband in for the long one and he talked non stop to take my mind off it.

Wishing everyone else who has their surgery in front of them the very best recovery.
Michelle_R
Member
9 years ago
By tomorrow night the biggest hurdle will be behind you - cancer out and gone! Best wishes for smooth surgery and good outcomes! xx Michelle
Isaidso
Member
9 years ago
Hi Unicornkisses, wishing you all the best for surgery tomorrow. Terrie xxx

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Just diagnosed but cannot even contact a surgeon until 9th January. Stress levels high.

83 Replies

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