The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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Me","id":"message:110095","revisionNum":1,"repliesCount":12,"author":{"__ref":"User:user:23220"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:110095"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:110095"},"body@stripHtml({\"truncateLength\":200})":"Hello. I was diagnosed on 25 March. I'd seen a lump on my right breast in the bathroom mirror and went to my GP. I've had a lumpectomy and sentinel nodes removed. They didn't expect to find any...","body@stringLength":"1336","rawBody":"Hello.
I was diagnosed on 25 March. I'd seen a lump on my right breast in the bathroom mirror and went to my GP.
I've had a lumpectomy and sentinel nodes removed. They didn't expect to find anything in the nodes and that I'd just be doing radiation and then hormone blockers. But there was some cancer, so they now want me to do chemo too. However, the team don't feel they have enough information to decide how long for, so I'm having more nodes removed tomorrow. That'll be the third surgery for me since diagnosis as I had some internal bleeding after the first one and they had to go back in that night to sort it out.
I did IVF for 5 years to have my daughter, who is now 10. I'm 50. I became a min-expert about IVF in those years, but I'm still reeling with all this new terminology and trying to learn what the hell is happening without freaking myself out even further. The five year survival stat does my head in because I'm struggling to cope with the idea that there's only an 85% chance that I'll be around for my little girl by the time she turns 15.
I'm trying to stay positive and am keen to learn what I can be doing to improve my treatment outcomes, so looking forward to sharing in the wisdom that I hope to gain from this place.
I was diagnosed on 25 March. I'd seen a lump on my right breast in the bathroom mirror and went to my GP.
I've had a lumpectomy and sentinel nodes removed. They didn't expect to find anything in the nodes and that I'd just be doing radiation and then hormone blockers. But there was some cancer, so they now want me to do chemo too. However, the team don't feel they have enough information to decide how long for, so I'm having more nodes removed tomorrow. That'll be the third surgery for me since diagnosis as I had some internal bleeding after the first one and they had to go back in that night to sort it out.
I did IVF for 5 years to have my daughter, who is now 10. I'm 50. I became a min-expert about IVF in those years, but I'm still reeling with all this new terminology and trying to learn what the hell is happening without freaking myself out even further. The five year survival stat does my head in because I'm struggling to cope with the idea that there's only an 85% chance that I'll be around for my little girl by the time she turns 15.
I'm trying to stay positive and am keen to learn what I can be doing to improve my treatment outcomes, so looking forward to sharing in the wisdom that I hope to gain from this place.
Thanks,
R.","customFields":[]},"Conversation:conversation:110095":{"__typename":"Conversation","id":"conversation:110095","solved":false,"topic":{"__ref":"ForumTopicMessage:message:110095"},"lastPostingActivityTime":"2021-04-25T20:25:46.000-07:00","lastPostTime":"2021-04-25T20:25:46.000-07:00","unreadReplyCount":12,"isSubscribed":false},"ModerationData:moderation_data:110095":{"__typename":"ModerationData","id":"moderation_data:110095","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:110095_1":{"__typename":"Revision","id":"revision:110095_1","lastEditTime":"2021-04-20T20:05:40.000-07:00"},"ForumReplyMessage:message:110098":{"__typename":"ForumReplyMessage","id":"message:110098","conversation":{"__ref":"Conversation:conversation:110095"},"author":{"__ref":"User:user:757"},"revisionNum":1,"uid":110098,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Introducing Me","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:110098"},"parent":{"__ref":"ForumTopicMessage:message:110095"},"body":"Hi @Melburnian no fun, hey, all this uncertainty. It can wreck your confidence a bit. The old ' overabundance of caution' thing in the early days of diagnosis can lead to situations like yours. The general approach is to take the least invasive actions first but, unfortunately, things can escalate uncomfortably quickly after that.
Its a good time to stop looking at the stats. They are really just that; a series of numbers that may, or may not, reflect your personal situation. Even the stats themselves have been derived over many years and do not represent the current advances in treatment. Until you know more about your own version of horrible, it's really best to leave them alone. Easier said than done, I know. Like Tonya, I'm a two time winner of the booby prize and am still around 16 years after my first diagnosis.
If you've learned to speak IVF, you'll learn to speak BC as well so don't worry about that too much either.
Focus on the end game, survival. Ask questions when you need to (pretty much constantly) and be prepared to occasionally get different answers from different professionals (I'll bet you are familiar with that scenario too) Choose your team carefully--you have more choice than most realise--and build relationships with those who resonate with you. Good luck. MXX","body@stringLength":"1352","rawBody":"Hi @Melburnian no fun, hey, all this uncertainty. It can wreck your confidence a bit. The old ' overabundance of caution' thing in the early days of diagnosis can lead to situations like yours. The general approach is to take the least invasive actions first but, unfortunately, things can escalate uncomfortably quickly after that.
Its a good time to stop looking at the stats. They are really just that; a series of numbers that may, or may not, reflect your personal situation. Even the stats themselves have been derived over many years and do not represent the current advances in treatment. Until you know more about your own version of horrible, it's really best to leave them alone. Easier said than done, I know. Like Tonya, I'm a two time winner of the booby prize and am still around 16 years after my first diagnosis.
If you've learned to speak IVF, you'll learn to speak BC as well so don't worry about that too much either.
Focus on the end game, survival. Ask questions when you need to (pretty much constantly) and be prepared to occasionally get different answers from different professionals (I'll bet you are familiar with that scenario too) Choose your team carefully--you have more choice than most realise--and build relationships with those who resonate with you. Good luck. MXX","kudosSumWeight":2,"repliesCount":0,"postTime":"2021-04-21T01:13:39.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:110098_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1743643394041":{"__typename":"CachedAsset","id":"theme:customTheme1-1743643394041","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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icon"},"localOverride":false},"ForumReplyMessage:message:58257":{"__typename":"ForumReplyMessage","id":"message:58257","revisionNum":1,"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"author":{"__ref":"User:user:1463"},"uid":58257,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:58256"},"subject":"Re: Recent diagnosis","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:58257"},"body":"Hi @jules01, Sorry to hear you've joined us. Making the step to post here takes courage, so well done. I too was diagnosed with Invasive Lobular Breast Cancer in April last year, 6 weeks prior to my 50th birthday. So your story resonates with me. Mine two had 2 tumours near each other, Grade 2 Stage 1. Fortunately my margins were clear following the lumpectomy. Preop my surgeon did warn me that further surgery may be required, which may be mastectomy. Thankfully that was not the case. Lobular is hard to see on a mammogram. Do everything you can to look after YOU! Rest when needed, go for walks or whatever exercise you enjoy, enjoy the sunshine....Ask your surgeon lots of questions. Also link up with a Breast Care nurse if you haven't done so already - mine is still so supportive. Good luck with everything!","body@stringLength":"822","rawBody":"Hi @jules01, Sorry to hear you've joined us. Making the step to post here takes courage, so well done. I too was diagnosed with Invasive Lobular Breast Cancer in April last year, 6 weeks prior to my 50th birthday. So your story resonates with me. Mine two had 2 tumours near each other, Grade 2 Stage 1. Fortunately my margins were clear following the lumpectomy. Preop my surgeon did warn me that further surgery may be required, which may be mastectomy. Thankfully that was not the case. Lobular is hard to see on a mammogram. Do everything you can to look after YOU! Rest when needed, go for walks or whatever exercise you enjoy, enjoy the sunshine....Ask your surgeon lots of questions. Also link up with a Breast Care nurse if you haven't done so already - mine is still so supportive. Good luck with everything!","kudosSumWeight":2,"repliesCount":0,"postTime":"2024-02-07T00:08:04.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:58257_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"parent":{"__ref":"ForumTopicMessage:message:58256"},"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"User:user:1463":{"__typename":"User","id":"user:1463","uid":1463,"login":"Aska","deleted":false,"avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-11.svg?time=0"},"rank":{"__ref":"Rank:rank:39"}},"ForumTopicMessage:message:58256":{"__typename":"ForumTopicMessage","uid":58256,"subject":"Recent diagnosis","id":"message:58256","revisionNum":1,"repliesCount":6,"author":{"__ref":"User:user:2988"},"readOnly":false},"Conversation:conversation:58256":{"__typename":"Conversation","id":"conversation:58256","solved":false,"topic":{"__ref":"ForumTopicMessage:message:58256"},"lastPostingActivityTime":"2024-02-07T20:10:51.000-08:00","lastPostTime":"2024-02-07T20:10:51.000-08:00","unreadReplyCount":6,"isSubscribed":false},"ModerationData:moderation_data:58257":{"__typename":"ModerationData","id":"moderation_data:58257","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:58257_1":{"__typename":"Revision","id":"revision:58257_1","lastEditTime":"2024-02-07T00:08:04.000-08:00"},"User:user:2988":{"__typename":"User","id":"user:2988","deleted":false,"uid":2988,"login":"jules01","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2024-02-06T21:39:24.000-08:00"}},"QueryVariables:ReplyList:message:110098:1":{"__typename":"QueryVariables","id":"ReplyList:message:110098:1","value":{"id":"message:110098","first":10,"sorts":{"postTime":{"direction":"DESC"}},"repliesFirst":3,"repliesFirstDepthThree":1,"repliesSorts":{"postTime":{"direction":"DESC"}},"useAvatar":true,"useAuthorLogin":true,"useAuthorRank":true,"useBody":true,"useKudosCount":true,"useTimeToRead":false,"useMedia":false,"useReadOnlyIcon":false,"useRepliesCount":true,"useSearchSnippet":false,"useAcceptedSolutionButton":true,"useSolvedBadge":false,"useAttachments":false,"attachmentsFirst":5,"useTags":false,"useNodeAncestors":false,"useUserHoverCard":false,"useNodeHoverCard":false,"useModerationStatus":true,"usePreviewSubjectModal":false,"useMessageStatus":true}}}}},"page":"/forums/ForumMessagePage/ForumMessagePage","query":{"boardId":"general-newly-diagnosed","messageSubject":"introducing-me","messageId":"110095","replyId":"110098"},"buildId":"Btkyb7T6TeYM9D2gUmiOv","runtimeConfig":{"buildInformationVisible":false,"logLevelApp":"info","logLevelMetrics":"info","openTelemetryClientEnabled":false,"openTelemetryConfigName":"breastcanceraus","openTelemetryServiceVersion":"25.2.0","openTelemetryUniverse":"prod","openTelemetryCollector":"http://localhost:4318","openTelemetryRouteChangeAllowedTime":"5000","apolloDevToolsEnabled":false,"inboxMuteWipFeatureEnabled":false},"isFallback":false,"isExperimentalCompile":false,"dynamicIds":["./components/seo/QAPageSchema/QAPageSchema.tsx","./components/community/Navbar/NavbarWidget.tsx","./components/community/Breadcrumb/BreadcrumbWidget.tsx","./components/messages/TopicWithThreadedReplyListWidget/TopicWithThreadedReplyListWidget.tsx","./components/messages/RelatedContentWidget/RelatedContentWidget.tsx","./components/messages/MessageListForNodeByRecentActivityWidget/MessageListForNodeByRecentActivityWidget.tsx","./components/customComponent/CustomComponent/CustomComponent.tsx","./components/messages/MessageView/MessageViewStandard/MessageViewStandard.tsx","../shared/client/components/common/List/ListGroup/ListGroup.tsx","./components/messages/MessageView/MessageView.tsx","./components/messages/MessageView/MessageViewInline/MessageViewInline.tsx","../shared/client/components/common/Pager/PagerLoadMore/PagerLoadMore.tsx","./components/customComponent/CustomComponentContent/HtmlContent.tsx","./components/customComponent/CustomComponentContent/CustomComponentScripts.tsx"],"appGip":true,"scriptLoader":[]}