Forum Discussion
byo_boy
10 months agoMember
Hi @AllyJay - thank you for your kind message and for sharing your story ... it really helps to put things in perspective. The fact that you're NED now after your experience is so encouraging and I think you're right, we really just need to trust the team, especially once they have all the facts, and perservere from there.
We've also literally just received our appointment for Rebecca's first PET scan tomorrow (God willing it's all clear), so things are starting to happen now. I had my first decent night's sleep last night in weeks (partly due to a massive walk yesterday and partly due to some phenergan!), which has helped a bit - although now that I'm sleeping deeply enough to have dreams, they're pretty yucky ones, so in a way I think sleeping lightly with minimal dreaming is actually a bit of a blessing :lol:
That said, I ordered the book Life Is Tough (But So Are You) to help keep us in a positive mindset - we're 100% sure we're going to kick this thing's butt together and in an odd way, I'm grateful that this journey has given us a reset and allowed us to really focus on what matters. Once we're done with this phase, I can really see a change where we become people who want to give back rather than just focussing on ourselves.
We've also literally just received our appointment for Rebecca's first PET scan tomorrow (God willing it's all clear), so things are starting to happen now. I had my first decent night's sleep last night in weeks (partly due to a massive walk yesterday and partly due to some phenergan!), which has helped a bit - although now that I'm sleeping deeply enough to have dreams, they're pretty yucky ones, so in a way I think sleeping lightly with minimal dreaming is actually a bit of a blessing :lol:
That said, I ordered the book Life Is Tough (But So Are You) to help keep us in a positive mindset - we're 100% sure we're going to kick this thing's butt together and in an odd way, I'm grateful that this journey has given us a reset and allowed us to really focus on what matters. Once we're done with this phase, I can really see a change where we become people who want to give back rather than just focussing on ourselves.