Information on reconstruction after Mastectomy please

@Joanne66

We can all understand what a shock it is and making decisions is the last thing you want to do right now. It’s usually possible to have some type of reconstruction long after the mastectomy, just as it’s possible to have immediate reconstruction. My surgeon preferred to wait which suited me well as I wasn’t sure (I was 67 and ultimately decided against reconstruction). Your best option for reconstruction may need an immediate decision, but maybe not. It’s important to have a discussion with your surgeon about all your options as soon as possible, so you can make an informed choice. Best wishes. 

Hi@Joanne66
My cancer was also lobular - called the “ sneaky” breast cancer as it often doesn’t show on a mammogram and also often ends up more extensive than first thought.
Initially my breast cancer surgeon was discussing a choice of a lumpectomy or a mastectomy but after the MRI the advice was firmly in favour of mastectomy due to the size of the tumour.
I ended up having double mastectomy  with delayed DIEP flap surgery 8 months after my radiotherapy was finished ( most don’t have radiotherapy after a mastectomy but I was recommended it due the size of my tumour).
I was 62 on diagnosis and asked my plastic surgeon if I was too old for reconstructive surgery and he said he had done women in their 70s and general health was just as important.
These are difficult decisions made at a time of extreme emotional upheaval .
If you ask to join the private group on here “ Choosing Breast Reconstruction “ there are lots of personal stories and photos I found very helpful in coming to my decision.
I talked to my GP, breast care nurse and also was lucky enough to have a friend who knew some one who had recently had a double mastectomy with DIEP flap surgery and I was able to tell with her which was extremely helpful.
I am happy with my decision but many women choose to go flat as well and that’s fine too - these are very personal decisions.
I had always been big breasted so the idea of going flat was a bridge too far for me but with my age I did go through a lot of anxiousness in coming to my decision.
Also  double  mastectomy versus single is also a big decision not for everybody .
Take care .
If you add your location yo your profile others may be able to give more targeted advice.
I am in Sydney and had my operations at St Vincent’s Private.

Sorry I meant to say I had skin soaring mastectomy with insertion of tissue expanders to “ hold the space” for later reconstruction - so you do need to have the conversation with your surgeon about keeping your options open.

My BC story is covered by my profile.
My breast reconstruction story is on 'Choosing Breast Reconstruction' Group, here online.
I've included photos on that story.
I think the big factors influencing your choices are age, body shape and most important is if Radiotherapy is planned. Also if Autologous or implants are a choice for you to make.
My reconstruction was delayed. I was just happy to get my cancer out ASAP. I was Stage 2, Grade 3.
I was not offered reconstruction advice at time of diagnosis, which was probably appropriate at that time.
I have no regrets. 

Hi @Joanne66.
I too was diagnosed with lobular cancer and needed a mastectomy due to the size and position of the tumour. I am 65. My surgeon asked me about my thoughts on reconstruction at my first visit and referred me to a plastic surgeon at the same time. After discussions with the surgeons and my wonderful breast care nurse, I was assured that I didn’t need to make any immediate decisions. Most types of reconstruction can be done at a later date. We didn’t know if I would need radiotherapy until after the surgery ( which can affect reconstruction), so I chose the “one thing at a time approach”. My surgeon did skin saving surgery and I have now decided to have DIEP flap and am on the waiting list. I won’t need tissue expanders. I am very happy that I have done things the way I have. The best piece of advice I was given was that I didn’t have to make any immediate decisions about this next step so that took the pressure off. Perhaps you could clarify this with your treating team.
Very best wishes.

Just an update on diagnosis and decision, it’s not known yet if I will need radiotherapy or chemo so the advice from surgeon was SMX or DMX with prospect of reconstruction at a later date. It’s been a tough decision but having a bilateral mastectomy next Friday. Can’t deal with one breast as size D and mentally for me being flat on one side would be to hard. This was a very hard decision and I hope I can cope with going flat (budda tummy) if I can’t I do have option of reconstruction later in the year depending on pathology reports on lymph nodes etc. Could have risked immediate reconstruction with breast reduction in other side but the longer recovery and unknown risks of further treatment was too much for me. Hoping I can live with this decision and cope ok🙏🏻 Thank you to all the warriors on this site, you are amazing!

It sounds like a good decision.
At least you have options later.
I hated having one breast only. Mine was 18.DD
One step at a time.
Recover the surgery first.
You will be fine.

Seems you’ve worked this through to a sensible decision.  Best wishes for your procedure. 

All the best for your surgery next week, @Joanne66 xx

Who knows, you might feel extremely comfortable with being flat & not take the recon option further down the line?  Have you joined the Reconstruction group yet?  I am sure there will be lots of before & after pics for you to check out - and the new 'Flat Chat' group (or whatever the name is, to be confirmed) will be started soon too - you can get the Mods to join you up, if you like.  You can then discuss any query that you may have, in total privacy .... all the pros & cons of everything!  (All the other posts are visible to the general public.) 

Check out this post for tips on what to take to hospital, self assessment 'tick sheets' that may help afterwards, when you see your Surgeon & other team members further down the track .... and other topics you might find of interest xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest

take care xx

No, not 'Flat Chat' - yet to be confirmed - 'Not Under Reconstruction'  is a suggested group name because some people don't go flat - some end up lop-sided !!