Forum Discussion
Inflammatory Breast Cancer
Moderator moved @MissL post from activity section to 'Newly Diagnosed': Hi ladies, I'm still in the testing stage, but have been told I have Inflammatory Breast Cancer, in Breast, skin & lymph nodes...
Hi MissL, what a shock this diagnosis must have been. I hope you have been doing okay and your treatment is progressing well.
I was also diagnosed with inflammatory breast cancer (HER2+) this year.
I have 3 more treatments of chemo to go before having a double mastectomy next month. Then on to radiation and continuation of the HER2+ immunotherapy.
I've had lots of side effects from the AC and paclitaxel chemos. Even though they are well-managed by my Mater cancer care team, it would be great to have an IBC support group I could go to. I haven't been able to find any groups online with recent activity.
I am keen to hear of yours and other's experience with this type of cancer; anything from the day-to-day to life after treatment. We're a tough bunch and I'd love to hear all about it 😍
Hi BrissyGirl
Welcome to the blog!! Whack up ANY question you have .... and we'll do our best to give you a helpful reply xx
If you do a search on "Inflammatory Breast Cancer" (in inverted commas) ... it will bring up other posts on it!
My post (below) has some valuable links on it, that may help you as you approach your surgery - what to take with you to hospital & other handy bits .... and Dr Charlotte Tottman's podcasts are just terrific.
Take care & all the best for your remaining Chemos & your surgery xx.