Forum Discussion
Mez_BCNA
2 years agoCommunity Manager
ILC Stage 2
Moderator moved @tarshy post to 'Newly Diagnosed': tarshy Well hello! My last post failed as terrible at computers and unless straight forward, well.... First "fist full" of breast removed for ...
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arpie
2 years agoMember
Hi @tarshy - sorry to see you join our exclusive club - the one none of us ever wanted to join!
If you are up to it, fill us in on your story so far .... what surgery you've had & ongoing treatments? If you continue posting on this thread, it will sort of become a 'diary' of your active treatment ...
Yes, ILC is different from the other BC cancers, as it doesn't show as a 'lump' as such - it is more 'strand like' and can be more difficult to identify in a mammogram. It is even more difficult to identify if you have dense breast tissue.
Was yours found during a routine mammogram check, or did you 'find a lump' & got it checked.
My GP found mine by accident, just months after a 'clear' mammogram in the rural bus. I had gone in for a pap smear, & she said "I'll check your breasts too'' ..... BOOM! The followup mammogram (in a Radiology Dept) did not show the ILC, so a biopsy was suggested & there were 2 tumours, both ILC. I had a lumpectomy, followed by 4 weeks radiation and currently on AIs/hormone blockers for 7 years (I finish next year.)
Feel free to join the ILC Private Group - we put up any new info 'as it is found' to keep abreast (so to speak) of new developments.
https://onlinenetwork.bcna.org.au/group/23-invasive-lobular-cancer-ilc
Also jump onto this thread for lots more info on the Forum ...... with 'off topic' threads like our pets, art & craft, meals & even some 'funnies' to give us a giggle.
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
take care & all the best
If you are up to it, fill us in on your story so far .... what surgery you've had & ongoing treatments? If you continue posting on this thread, it will sort of become a 'diary' of your active treatment ...
Yes, ILC is different from the other BC cancers, as it doesn't show as a 'lump' as such - it is more 'strand like' and can be more difficult to identify in a mammogram. It is even more difficult to identify if you have dense breast tissue.
Was yours found during a routine mammogram check, or did you 'find a lump' & got it checked.
My GP found mine by accident, just months after a 'clear' mammogram in the rural bus. I had gone in for a pap smear, & she said "I'll check your breasts too'' ..... BOOM! The followup mammogram (in a Radiology Dept) did not show the ILC, so a biopsy was suggested & there were 2 tumours, both ILC. I had a lumpectomy, followed by 4 weeks radiation and currently on AIs/hormone blockers for 7 years (I finish next year.)
Feel free to join the ILC Private Group - we put up any new info 'as it is found' to keep abreast (so to speak) of new developments.
https://onlinenetwork.bcna.org.au/group/23-invasive-lobular-cancer-ilc
Also jump onto this thread for lots more info on the Forum ...... with 'off topic' threads like our pets, art & craft, meals & even some 'funnies' to give us a giggle.
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
take care & all the best
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