Forum Discussion

StephO's avatar
StephO
Member
8 years ago

IDC, 30 years old, BRCA1

Hi,

My name is Steph. I’m 30 years old. I have recently been diagnosed with breast cancer (IDC). I also have BRCA1 gene mutation.
i have had sentinel node biopsy which came back clear (3 lymph nodes taken).

this coming Tuesday 10th of April I will be under going a bilateral mastectomy with reconstruction (expanders/implants?).

My Mum had breast cancer 5 years ago, aged 57.

A little about me... 
I am a single mother to an almost 7 year old boy. I have an identical twin sister. I work as a nurse in aged care.

i would be interested in chatting to other women Dx with BC around my age. I’m also happy to chat with other women of any aged dx with BC.

thanks 


  • Hi and welcome. You might be intetested in joining our breast reconstruction group also. People have shared their photo stories in there. 
  • I’m not sure how to navigate this yet, I’m sure I’ll get the hang of it.
    thank you ladies for all your comments, support and help. I really appreciate it xx
  • hi StephO

    Below are a couple of links to help you find your way around the forum and also how to find a breast care nurse and how to order a MY journey Kit if you haven't got one yet. 

    It can be a a whirlwind when we first get a diagnosed.... Breathe and take it one step at a time. 

    The what and how thread.

    http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1 

    Breast Care Nurses

    https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx 

    My Journey Kits and other resources. 

    https://www.bcna.org.au/resources/

    BCNA Helpline 1800 500 258

    If you have any questions, concerns or require any further information or support please call 1800 500 258.  The Helpline is open Monday, Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am till 9 pm EST.

     

     Young Women group   https://onlinenetwork.bcna.org.au/group/10-young-women 

    How to understand your pathology reports

    https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/breast-cancer-pathology.html

  • Hi there @StephO welcome to the forum. Sorry you’ve had to join but you will get plenty of support on this forum from people from all walks of life. Best of luck with your surgery. I totally understand why you’re having the double with recon. I’m a nurse as well I was diagnosed aged 43 with triple neg breast cancer. I had 8 rounds of chemo and had the left boob off with the cancer in it (stage 2a grade 3 with 8 lymph nodes taken and all clear and scans all clear too) and then took the other boob off as a prophylaxis. After seeing your mum go through it it must be an emotional time for both her you and your sister to go through it again. I wish you all the very best with your trestment too if you need to have any.  Keep us posted how you go love. Happy to chat any time they are a great group for sure on here. Biggest hug. Margie x
  • @JoeyLiz, you may be able to help out here.

    @StephO, sorry you find yourself here, but you'll find lots of support, regardless of age. I  too, am a nurse, no longer working clinically ad I developed lymphoedema after my surgery. 
    Take care
  • Welcome @StephO. You'll find a lot of info and support here.  I see that @kmakm has suggested the Young Women group.  As you may have noticed, there is also the Choosing Breast Reconstruction group.  Good luck with surgery on Tuesday.
  • Hi Steph. I'm sorry that you've found yourself here but I hope you'll find it as supportive and helpful as I have.

    Scroll down and you'll see listed in the groups section a group called 'Young Women' which would be perfect for you.

    You can also use the search bar to navigate to particular subjects that interest you.

    Hugs and best wishes. Hang in there. Kate xox