Forum Discussion
arpie
6 months agoMember
I am So sorry to see you here & having to return for more surgery @Cazza_61 ..... and wishing you all the best for your surgery on Fri xx. Where abouts are you, roughly? (town/city? you can add it to your Profile & then members may be able to point you to specific supports in your region that may benefit your recovery & afterwards xx)
I'm not really sure how your surgeon can blame BreastScreen Qld for this result ... BreastScreen Qld's role in this, is to detect that there is a problem that needs investigating & probable surgery .... then it is out of their hands.
It is the surgeon's responsibility (with the aid of ultrasound or CT/MRI scans/Sentinel Node tests) to determine the actual size of the tumour and possible spread - & then to go in & surgically remove it with 'clear margins' .... Sometimes they find that the tumour is bigger than indicated on the scans/mammograms, so requires the removal of more flesh (or even the whole breast) needed to attain those clear margins. Sometimes it is done at the same time or as in your case, a 2nd surgery. :(
Your DCIS is unlikely to have grown 'that much' in the month between detection & surgery. I sadly think your surgeon is telling porkies & trying to shift the blame for the need of a 2nd surgery. :(
A company in Victoria called Optiscan has developed a 'wand' that is currently used in oral/dental surgery, that detects cancer cells in the remaining tissue during surgery - and they are doing 50 trials down in Vic with breast cancer patients, to see how effective it will be with breast cancer surgery! I hope the trials are successful, as it is really the only way of identifying that active cells have been missed during the surgery - and by removing more tissue, then & there! It should prevent the need for secondary surgery, such as yours on Friday.
I'd told my surgeon that if he went in & found it was worse than he thought - that I was prepared to have a mastectomy - I was lucky, it was small & only needed a lumpectomy.
Feel free to jump onto this post that covers a lot of information about BCNA & members - lots of posts to check out when you feel up to it - jump on board & reply. We even have some funny threads too (as we all need a laugh now & then!), as well as checking out our gardens, art & craft, pets etc xx There are some 'tick sheets' down the bottom, where you can 'self assess' re your mental & physical health - often it can be easier to fill them in & show your team how you are feeling, than talking about it.
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
take care & all the best for Friday xx
I'm not really sure how your surgeon can blame BreastScreen Qld for this result ... BreastScreen Qld's role in this, is to detect that there is a problem that needs investigating & probable surgery .... then it is out of their hands.
It is the surgeon's responsibility (with the aid of ultrasound or CT/MRI scans/Sentinel Node tests) to determine the actual size of the tumour and possible spread - & then to go in & surgically remove it with 'clear margins' .... Sometimes they find that the tumour is bigger than indicated on the scans/mammograms, so requires the removal of more flesh (or even the whole breast) needed to attain those clear margins. Sometimes it is done at the same time or as in your case, a 2nd surgery. :(
Your DCIS is unlikely to have grown 'that much' in the month between detection & surgery. I sadly think your surgeon is telling porkies & trying to shift the blame for the need of a 2nd surgery. :(
A company in Victoria called Optiscan has developed a 'wand' that is currently used in oral/dental surgery, that detects cancer cells in the remaining tissue during surgery - and they are doing 50 trials down in Vic with breast cancer patients, to see how effective it will be with breast cancer surgery! I hope the trials are successful, as it is really the only way of identifying that active cells have been missed during the surgery - and by removing more tissue, then & there! It should prevent the need for secondary surgery, such as yours on Friday.
I'd told my surgeon that if he went in & found it was worse than he thought - that I was prepared to have a mastectomy - I was lucky, it was small & only needed a lumpectomy.
Feel free to jump onto this post that covers a lot of information about BCNA & members - lots of posts to check out when you feel up to it - jump on board & reply. We even have some funny threads too (as we all need a laugh now & then!), as well as checking out our gardens, art & craft, pets etc xx There are some 'tick sheets' down the bottom, where you can 'self assess' re your mental & physical health - often it can be easier to fill them in & show your team how you are feeling, than talking about it.
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
take care & all the best for Friday xx