Welcome @Jennie_Lou The others have said it all, really. It can be exhausting trying to keep everyone else up when you're trying to get your head around everything yourself. How you react to this disease will be your own way but we do understand where many people in your "real life" won't. I found that I didn't want to have to constantly tell people what was happening so I asked two of my best friends (from two different friendship groups) and told them, asking them to pass on the info and to say that I didn't want to talk to people for the moment. While I was in hospital for surgery, my husband set up a blog page for me. I posted in that quite often so that family, friends and colleagues could follow what was going on. It made it so much easier for all of us and now is a fantastic record of a year that I don't really recall very well.
Remember to breathe and take one day at a time.