Sorry to see you here, @Jennie_Lou - but you are in the right spot for support, comfort, advice & even venting - from those who've gone before you .....
Will you have a friend or family member attend the meetings with you? Even if you do - maybe record the meetings on your phone, as it is easy to 'miss bits' as you are pondering what they've just said, you miss the next bit.
The waiting for appointments & results etc really sucks big time - I hope you get your game plan really soon.
Take care & thinking of you xxx