Anyway, I had the EndoPredict test. For me it came back as a yes to chemo as I was \"clearly in\" the range where it where it would have a benefit. Chemo sucked, but for almost everyone it's not the horror show that it once was. I didn't throw up once I'm happy to say. Some people even manage to work through it. Another of our members had the test recently and she didn't have to have chemo as a result.
So hang in there. Try not to cross bridges until you come to them. A wedding is a lovely thing to look forward to! The waiting is truly awful so focus on the good things. One step at a time lovely. K xox","board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:70788"},"author":{"__typename":"User","login":"kmakm"},"postTime":"2019-03-23T14:31:57.000-07:00","kudosSumWeight":1}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":70795,"body":"Hi @Pepsijax Sorry you’ve joined us, but I’ve found this forum so welcoming and helpful in the last 5 weeks since I was diagnosed.
Something to consider down the track (I know it’s a lot to comprehend right now and the focus should be on your current treatment plan) but this also may help future readers...
Given my young age (27) at diagnosis I was automatically referred to a geneticist. I saw a geneticist last week and they asked about stomach cancer in my family. The fact that your husband died of that and you now have breast cancer may mean your children are higher risk for a mutation called TP53 (or TP54 I can’t 100% recall sorry) Anyway, I don’t want this to scare you, but the geneticist said if there’s a family history of both stomach and breast cancer risk is higher for this mutation. This is something you could discuss with your team in a few months when things have settled down and see if your children might qualify for testing.
Once again I hope this hasn’t scared you and I am not a geneticist! Just wanted to reiterate what I was told only last week.
Best of luck with waiting for the results to decide, ask lots of questions here or just post feelings !!! :) ","board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:70788"},"author":{"__typename":"User","login":"youngdogmum"},"postTime":"2019-03-23T15:44:45.000-07:00","kudosSumWeight":1}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":70796,"body":"I didn't have the testing and just had chemo. I didn't know there was a testing option or I might have not had chemo done. Your kids will think its great you got on to the cancer early. At least they will still have their mum for many years to come. <3
The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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Low and behold , I was diagnosed with stage 1 breast cancer , no lump , nothing . Couldn’t believe it . I just couldn’t believe I was going to have to put my kids through this all Over again. It was really hard telling them. Fast forward and I decided on radical treatment . Double mastectomy, during which I had sentinel node biopsy and ended up with axillary clearence / one node positive is it of 10. Now I’m considering the treatment plan. My daughter is getting married in 5 weeks so it’s all happening at once . I’m having some genomic test done to see if chemo will benefit me or if hormone therapy alone is going to be enough. Having to wait 2 weeks for this result is hard . Has anyone else has the testing done?
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Umm I came to Melbourne last week from interstate for breast lump testing. It’s confirmed cancer and I am awaiting staging, this week. 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","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:70800_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:21752":{"__typename":"User","id":"user:21752","uid":21752,"login":"youngdogmum","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-02-24T13:13:39.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/avatarstock/pWY4URWGLGO4D.png"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:21752"},"ModerationData:moderation_data:70799":{"__typename":"ModerationData","id":"moderation_data:70799","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:70799":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21752"},"id":"message:70799","revisionNum":1,"uid":70799,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:70788"},"conversation":{"__ref":"Conversation:conversation:70788"},"subject":"Re: First mamogram ever","moderationData":{"__ref":"ModerationData:moderation_data:70799"},"body":"@Pepsijax took me a while to figure it out too! If you type @ and then the persons online name it will highlight them :) you’re welcome! I thought it would be useful for your family. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"207","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-03-24T12:07:02.000-07:00","lastPublishTime":"2019-03-24T12:07:02.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:70788/message:70799","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"211","rawBody":"@Pepsijax took me a while to figure it out too! If you type @ and then the persons online name it will highlight them :) you’re welcome! I thought it would be useful for your family. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:70799_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:70798":{"__typename":"ModerationData","id":"moderation_data:70798","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:70798":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21742"},"id":"message:70798","revisionNum":1,"uid":70798,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:70788"},"conversation":{"__ref":"Conversation:conversation:70788"},"subject":"Re: First mamogram ever","moderationData":{"__ref":"ModerationData:moderation_data:70798"},"body":"
Hi @Pepsijax Sorry you’ve joined us, but I’ve found this forum so welcoming and helpful in the last 5 weeks since I was diagnosed.
Something to consider down the track (I know it’s a lot to comprehend right now and the focus should be on your current treatment plan) but this also may help future readers...
Given my young age (27) at diagnosis I was automatically referred to a geneticist. I saw a geneticist last week and they asked about stomach cancer in my family. The fact that your husband died of that and you now have breast cancer may mean your children are higher risk for a mutation called TP53 (or TP54 I can’t 100% recall sorry) Anyway, I don’t want this to scare you, but the geneticist said if there’s a family history of both stomach and breast cancer risk is higher for this mutation. This is something you could discuss with your team in a few months when things have settled down and see if your children might qualify for testing.
Once again I hope this hasn’t scared you and I am not a geneticist! Just wanted to reiterate what I was told only last week.
Best of luck with waiting for the results to decide, ask lots of questions here or just post feelings !!! :)
\n
\nThanks so much for that info. Was trying to work out how to respond to everyone’s message ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-03-24T02:42:13.000-07:00","lastPublishTime":"2019-03-24T02:42:13.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:70788/message:70798","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"1567","rawBody":"
Hi @Pepsijax Sorry you’ve joined us, but I’ve found this forum so welcoming and helpful in the last 5 weeks since I was diagnosed.
Something to consider down the track (I know it’s a lot to comprehend right now and the focus should be on your current treatment plan) but this also may help future readers...
Given my young age (27) at diagnosis I was automatically referred to a geneticist. I saw a geneticist last week and they asked about stomach cancer in my family. The fact that your husband died of that and you now have breast cancer may mean your children are higher risk for a mutation called TP53 (or TP54 I can’t 100% recall sorry) Anyway, I don’t want this to scare you, but the geneticist said if there’s a family history of both stomach and breast cancer risk is higher for this mutation. This is something you could discuss with your team in a few months when things have settled down and see if your children might qualify for testing.
Once again I hope this hasn’t scared you and I am not a geneticist! Just wanted to reiterate what I was told only last week.
Best of luck with waiting for the results to decide, ask lots of questions here or just post feelings !!! :)
\n
\nThanks so much for that info. Was trying to work out how to respond to everyone’s message ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:70798_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:70797":{"__typename":"ModerationData","id":"moderation_data:70797","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:70797":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21742"},"id":"message:70797","revisionNum":1,"uid":70797,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:70788"},"conversation":{"__ref":"Conversation:conversation:70788"},"subject":"Re: First mamogram ever","moderationData":{"__ref":"ModerationData:moderation_data:70797"},"body":"Thank you so mich everyone for your words of encouragement . And ideas and experiences . I really appreciate listening to all the good advice from a. Variety of survivors . Thank you all xxx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"190","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-03-23T21:42:38.000-07:00","lastPublishTime":"2019-03-23T21:42:38.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:70788/message:70797","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"190","rawBody":"Thank you so mich everyone for your words of encouragement . And ideas and experiences . I really appreciate listening to all the good advice from a. Variety of survivors . Thank you all xxx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:70797_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:17828":{"__typename":"User","id":"user:17828","uid":17828,"login":"Brenda5","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2015-10-25T13:16:49.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/avatars/pd116992282b42bc71c6b87df7fa522ff.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:17828"},"ModerationData:moderation_data:70796":{"__typename":"ModerationData","id":"moderation_data:70796","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:70796":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:17828"},"id":"message:70796","revisionNum":1,"uid":70796,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:70788"},"conversation":{"__ref":"Conversation:conversation:70788"},"subject":"Re: First mamogram ever","moderationData":{"__ref":"ModerationData:moderation_data:70796"},"body":"I didn't have the testing and just had chemo. I didn't know there was a testing option or I might have not had chemo done. Your kids will think its great you got on to the cancer early. At least they will still have their mum for many years to come. <3
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-03-23T17:24:11.000-07:00","lastPublishTime":"2019-03-23T17:24:11.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:70788/message:70796","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"267","rawBody":"I didn't have the testing and just had chemo. I didn't know there was a testing option or I might have not had chemo done. Your kids will think its great you got on to the cancer early. At least they will still have their mum for many years to come. <3
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:70796_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:70795":{"__typename":"ModerationData","id":"moderation_data:70795","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:70795":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21752"},"id":"message:70795","revisionNum":1,"uid":70795,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:70788"},"conversation":{"__ref":"Conversation:conversation:70788"},"subject":"Re: First mamogram ever","moderationData":{"__ref":"ModerationData:moderation_data:70795"},"body":"Hi @Pepsijax Sorry you’ve joined us, but I’ve found this forum so welcoming and helpful in the last 5 weeks since I was diagnosed.
Something to consider down the track (I know it’s a lot to comprehend right now and the focus should be on your current treatment plan) but this also may help future readers...
Given my young age (27) at diagnosis I was automatically referred to a geneticist. I saw a geneticist last week and they asked about stomach cancer in my family. The fact that your husband died of that and you now have breast cancer may mean your children are higher risk for a mutation called TP53 (or TP54 I can’t 100% recall sorry) Anyway, I don’t want this to scare you, but the geneticist said if there’s a family history of both stomach and breast cancer risk is higher for this mutation. This is something you could discuss with your team in a few months when things have settled down and see if your children might qualify for testing.
Once again I hope this hasn’t scared you and I am not a geneticist! Just wanted to reiterate what I was told only last week.
Best of luck with waiting for the results to decide, ask lots of questions here or just post feelings !!! :) ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-03-23T15:44:45.000-07:00","lastPublishTime":"2019-03-23T15:44:45.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:70788/message:70795","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"1280","rawBody":"Hi @Pepsijax Sorry you’ve joined us, but I’ve found this forum so welcoming and helpful in the last 5 weeks since I was diagnosed.
Something to consider down the track (I know it’s a lot to comprehend right now and the focus should be on your current treatment plan) but this also may help future readers...
Given my young age (27) at diagnosis I was automatically referred to a geneticist. I saw a geneticist last week and they asked about stomach cancer in my family. The fact that your husband died of that and you now have breast cancer may mean your children are higher risk for a mutation called TP53 (or TP54 I can’t 100% recall sorry) Anyway, I don’t want this to scare you, but the geneticist said if there’s a family history of both stomach and breast cancer risk is higher for this mutation. This is something you could discuss with your team in a few months when things have settled down and see if your children might qualify for testing.
Once again I hope this hasn’t scared you and I am not a geneticist! Just wanted to reiterate what I was told only last week.
Best of luck with waiting for the results to decide, ask lots of questions here or just post feelings !!! :) ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:70795_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:20700":{"__typename":"User","id":"user:20700","uid":20700,"login":"kmakm","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-02-09T07:37:32.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/723/pT0EUNG97M543.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20700"},"ModerationData:moderation_data:70794":{"__typename":"ModerationData","id":"moderation_data:70794","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:70794":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20700"},"id":"message:70794","revisionNum":1,"uid":70794,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:70788"},"conversation":{"__ref":"Conversation:conversation:70788"},"subject":"Re: First mamogram ever","moderationData":{"__ref":"ModerationData:moderation_data:70794"},"body":"Hi @Pepsijax. Welcome to the forum and sorry that you're here. I understand all to well the kind of clusterf**k you find yourself in. I was diagnosed with breast cancer 17 months after my sister died from it (click on my @name for a summary of my story). I hear you about telling your family the news. The absolute worst.
Anyway, I had the EndoPredict test. For me it came back as a yes to chemo as I was \"clearly in\" the range where it where it would have a benefit. Chemo sucked, but for almost everyone it's not the horror show that it once was. I didn't throw up once I'm happy to say. Some people even manage to work through it. Another of our members had the test recently and she didn't have to have chemo as a result.
So hang in there. Try not to cross bridges until you come to them. A wedding is a lovely thing to look forward to! The waiting is truly awful so focus on the good things. One step at a time lovely. K xox","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-03-23T14:31:57.000-07:00","lastPublishTime":"2019-03-23T14:31:57.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:70788/message:70794","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"951","rawBody":"Hi @Pepsijax. Welcome to the forum and sorry that you're here. I understand all to well the kind of clusterf**k you find yourself in. I was diagnosed with breast cancer 17 months after my sister died from it (click on my @name for a summary of my story). I hear you about telling your family the news. The absolute worst.
Anyway, I had the EndoPredict test. For me it came back as a yes to chemo as I was \"clearly in\" the range where it where it would have a benefit. Chemo sucked, but for almost everyone it's not the horror show that it once was. I didn't throw up once I'm happy to say. Some people even manage to work through it. Another of our members had the test recently and she didn't have to have chemo as a result.
So hang in there. Try not to cross bridges until you come to them. A wedding is a lovely thing to look forward to! The waiting is truly awful so focus on the good things. One step at a time lovely. K xox","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:70794_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:21072":{"__typename":"User","id":"user:21072","uid":21072,"login":"kitkatb","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-06-01T22:56:32.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/542/p8JQNT18AGRR3.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:21072"},"ModerationData:moderation_data:70793":{"__typename":"ModerationData","id":"moderation_data:70793","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:70793":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21072"},"id":"message:70793","revisionNum":1,"uid":70793,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:70788"},"conversation":{"__ref":"Conversation:conversation:70788"},"subject":"Re: First mamogram ever","moderationData":{"__ref":"ModerationData:moderation_data:70793"},"body":"Hi @Pepsijax welcome to the forum. I am so sorry to hear of what you have gone through the last couple of years. But sounds like you have well and truly taken the bull by the horns with your surgery and upcoming treatment plans. I haven't had the genomic test but someone will come on shortly who has. As Arpie has said it must be great having the wedding coming up soon and take your mind off things because the waiting just sucks, hopefully you can organise your treatment for after the celebrations. If you have any questions at all just fire away as we all get it. Good luck with everything. xo","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"218","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-03-23T14:21:36.000-07:00","lastPublishTime":"2019-03-23T14:21:36.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:70788/message:70793","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"639","rawBody":"Hi @Pepsijax welcome to the forum. I am so sorry to hear of what you have gone through the last couple of years. But sounds like you have well and truly taken the bull by the horns with your surgery and upcoming treatment plans. I haven't had the genomic test but someone will come on shortly who has. As Arpie has said it must be great having the wedding coming up soon and take your mind off things because the waiting just sucks, hopefully you can organise your treatment for after the celebrations. If you have any questions at all just fire away as we all get it. Good luck with everything. xo","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:70793_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:20667":{"__typename":"User","id":"user:20667","uid":20667,"login":"arpie","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-01-13T01:35:16.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-8.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20667"},"ModerationData:moderation_data:70792":{"__typename":"ModerationData","id":"moderation_data:70792","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:70792":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20667"},"id":"message:70792","revisionNum":1,"uid":70792,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:70788"},"conversation":{"__ref":"Conversation:conversation:70788"},"subject":"Re: First mamogram ever","moderationData":{"__ref":"ModerationData:moderation_data:70792"},"body":"I am SO sorry to hear of both your husband's passing and your diagnosis @Pepsijax
Stomach cancer is a particularly nasty one. My husband had most of his stomach removed in 2010 - many don't make it to 5 years - he's at 9 years just now - but following the surgery, developed anaphylaxis, diabetes & now dementia! grrr.
What a bugger - your diagnosis - well done on doing the screening off your own bat & finding it early and doing the hard yards.
I think @kmakm had some sort of gene testing done .... she may be able to answer your questions.
All the best for your daughter's wedding ..... it's been a tough year for your whole family - so good to have something lovely on the horizon to look forward to. Big hugs coming your way xx
Doesn't the waiting suck? Good luck on the results. Even if you do need chemo, I am sure it could wait til after the wedding & celebrations.
take care xxx
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-03-23T13:35:21.000-07:00","lastPublishTime":"2019-03-23T13:35:21.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:70788/message:70792","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"1009","rawBody":"I am SO sorry to hear of both your husband's passing and your diagnosis @Pepsijax
Stomach cancer is a particularly nasty one. My husband had most of his stomach removed in 2010 - many don't make it to 5 years - he's at 9 years just now - but following the surgery, developed anaphylaxis, diabetes & now dementia! grrr.
What a bugger - your diagnosis - well done on doing the screening off your own bat & finding it early and doing the hard yards.
I think @kmakm had some sort of gene testing done .... she may be able to answer your questions.
All the best for your daughter's wedding ..... it's been a tough year for your whole family - so good to have something lovely on the horizon to look forward to. Big hugs coming your way xx
Doesn't the waiting suck? Good luck on the results. Even if you do need chemo, I am sure it could wait til after the wedding & celebrations.
take care xxx
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