Forum Discussion
Feeling Stressed
Hi everyone, I haven’t posted for awhile have been going through treatment, not sure if I have posted this in the right category. Diagnosed with TNBC in October 2018.
Have finished my 4 treatments of A/C every fortnight, body hasn’t cooed with it very well, been in hospital twice with neutropenia and rhino virus.
Had a PICC line put in a month ago only to have it removed a few weeks after due to blood clots in my arm.
During one of my hospital stays a CT scan was arranged to check chest for infections etc, anyway they did find an enlarged Lymph node not far from the original surgery site.
Investigation on lymph node with an ultrasound and aspiration was performed.
Results came back advising me that the lymph node has cancer cells , some of which have already died from chemotherapy.
I’m just feeling quite defeated , devastated, the what if’s are going through my head again, back to crying, feel I’m not coping at all at the moment.
This has been such a shock as after surgery in December I was told that I had clear margins and no lymph node involvement. Chemotherapy and Radiotherapy just to mop up anything .
I had only two sentinel lymph nodes removed back in December .
Has anyone have this happen to them?
Moving forward the plan is to finish my 12 weeks of weekly Paclitaxel which commences next week 11/4, then in July I’m booked in for surgery for a full auxiliary clearance under my left arm, then Radiotherapy.
In one way I feel fortunate that this was found on a CT scan that wasn’t planned, as if it was left a lot longer things could have been very different.
Trying so hard to get those positive thoughts back again.
Have finished my 4 treatments of A/C every fortnight, body hasn’t cooed with it very well, been in hospital twice with neutropenia and rhino virus.
Had a PICC line put in a month ago only to have it removed a few weeks after due to blood clots in my arm.
During one of my hospital stays a CT scan was arranged to check chest for infections etc, anyway they did find an enlarged Lymph node not far from the original surgery site.
Investigation on lymph node with an ultrasound and aspiration was performed.
Results came back advising me that the lymph node has cancer cells , some of which have already died from chemotherapy.
I’m just feeling quite defeated , devastated, the what if’s are going through my head again, back to crying, feel I’m not coping at all at the moment.
This has been such a shock as after surgery in December I was told that I had clear margins and no lymph node involvement. Chemotherapy and Radiotherapy just to mop up anything .
I had only two sentinel lymph nodes removed back in December .
Has anyone have this happen to them?
Moving forward the plan is to finish my 12 weeks of weekly Paclitaxel which commences next week 11/4, then in July I’m booked in for surgery for a full auxiliary clearance under my left arm, then Radiotherapy.
In one way I feel fortunate that this was found on a CT scan that wasn’t planned, as if it was left a lot longer things could have been very different.
Trying so hard to get those positive thoughts back again.
21 Replies
- Thanks everyone, wanting to plan a cruise when treatment is all over.
Will get in touch with OTIS to see what is available.
xoxo - @Shellshocked2018_ I'm glad that you're coming up for air. Sometimes it does get too much and it just closed in on you. Regards: Otis in SA - the waiting times aren't as bad as in Eastern states but if you're wanting popular times, best get in early if you can. I believe that Cancer Council have a place at Moonta, too. I don't know how hard that is to get.
- @Shellshocked2018_ Get in as early as possible with Otis. They have a long waiting list at the moment. K xox
- Thanks Blossom1961, it’s great to know that other people are there for you.
This is such a tough roller coaster ride and it does your head in at times.
Thanks for being there.
sending hugs xoxo - Thanks so much for the offer.
Back in a good head space again.
Just this shit really messes with your head at times, and if we let the negatives come in it’s a frickin...... nightmare as your mind wanders to all sorts of depressing things.
Coping well with the Pactlitaxel at the moment, time will tell as this will accumulate in my body over the next 10 weeks so I will get more lethargic and tired as time goes on.
Having chemo with someone else I know and we are at the same stage, so it makes the time at the infusion unit more bearable. She is also TNBC .
Might see what OTIS has to offer once I’ve had my next lot of surgery July 17th, have some recovery time before I commence Radiotherapy. - @Shellshocked2018_ I've got a spare bed for the next two nights, you're more than welcome to run away to mine! K xox ;)
- Fight mode is good. If you go into flight mode that is okay too. Sometimes we need that and we are always here for you. xxx
- Thank you everyone for your kind thoughts.
Im back into positive fight mode again, now I’m over the shock.
Just started weekly Paclitaxel for 12 weeks then booked in for more surgery for full auxiliary clearance mid July.
Once healed Radiotherapy.
Thank you everyone. - Many people work through chemo - may seem unaffected but it's their own way of coping, just to keep everything as normal as possible. The best you can do is respect her choices, and act as she wishes.
- @Nett19 A simple bouquet of flowers as a pickmeup and she will adore it. Her daughters are probably on hand if she needs looking after.
